Welcome to Tyler and Parker Thompson's Blog

Tyler and Parker Thompson arrived on June 23, 2008 at only 26 weeks and 4 days old, weighing 1 pound 6 ounces (Parker) and 1 pound 10 ounces (Tyler). Parker spent 129 days (home 10/30/08) in the NICU, while brother Tyler spent 143 (home 11/13/08). We are thrilled to have our family complete with both boys home!

This blog was created by John (the daddy) to inform family and friends (and now new acquaintances) of the twins progression. Below is the blog archive dating back to the week Heather (the mommy) was admitted to the hospital. We try to post weekly updates, but on occasion the week gets the best of us.




Thursday, November 5, 2009

Mystery Diagnosis

I just talked to the GI and she said Tyler's biopsy has not come back from the endoscopy he had Friday. When I asked about his allergy panel she said it was negative - showing NO signs of allergies. What? Are you kidding? So I asked her what she thought was wrong with Tyler (he's constantly in pain when he is being gavaged) - she said we'll have to wait until Monday or Tuesday and see what the biopsy produces.

So the big question is: what are the white spots up and down his esophagus that she thought could be allergy related?

Our heads are spinning right now and I'm trying not to go to a dark place. Argh!

So now we get to take the boys to the Pediatrician in a few minutes so they can get their first of five RSV shots and hopefully 2nd round flu shot. I'm not sure if they'll be able to have the flu shot because they just had the H1N1 shot on Monday, we'll see!

I hope we get some useful information on Monday or Tuesday. I'll let everyone know!

Gut wrenching feeling...

1 comment:

Trish said...

I hope you get some answers.
I had to give up any real gavaging of Robbie. Anything less than an hour for a feeding and things get ugly.
I'll be interested to see what you guys come up with. Good luck!