Sunday, November 29, 2009
Tuesday, November 24, 2009
Tyler is very serious about his koosh!
Monday, November 16, 2009
Before you view the fun pictures of Tyler's homecoming, I have to share other great news from Friday. Our case worker from our insurance company called Friday afternoon to tell me that our feeding specialist was approved! I have been working on this for over 3 months and it's finally happening! This feeding therapist can make or break a child's ability to eat. Her techniques will not only assist in battling Tyler's gag reflex and throw up spells caused by food in his mouth, but reduce our timetable for getting both boys 100% oral. It sounds like I'm putting a lot of eggs in this basket, but I have faith in her and her approach. I know this makes more work for me, but I also know the challenge will be worth it in the long run!
Lastly, the boys had an assessment by CA Alta Regional Center on Friday. The good news is that the boys will continue to receive developmental and occupational therapies for at least 6 more months until their next assessment. Both therapies have been great not only for the boys, but me as well. Their approach to teaching the boys has been useful in my daily interaction with the boys as well. And they really enjoy the developmental therapist, Danielle, who's been with the boys for almost a year now.
So as you could imagine, November 13th was quite a day for progress in Thompson house! The only hitch in the excitement was Tyler's poor raw rear caused by his antibiotics. Poor Ty is pooping out a runny, orangey colored stool that obviously holds acidic qualities because his rump is just red and he cries and cries as we're cleaning him and applying gobs of Aquaphor. We heard that Aquaphor and Gold Bond baby powder work wonders in combination. We're going to try that tonight and see how it all looks tomorrow. We're not sure if the medications are helping with his ulcers and probably won't notice anything for a while. We look forward to seeing improvement and an ulcer-free endoscopy in 3 months.
Below are pictures of little Tyler on November 13, 2008, his day of discharge. Enjoy!
I think the doctors projected that we'd have difficulty with Tyler's eating so they plumped him up before discharge. Before he left that day he had a hearing test - looks like he's sleeping through it!
Thursday, November 12, 2009
A duodenal ulcer is a raw area in the lining in the upper part of the small intestine (duodenum), where it connects to the stomach. Tyler has multiple ulcers, so the spots were actually lesions, or erosion of the area.
Normally duodenal ulcers are caused by family history, having a Helicobacter pylori infection, using nonsteroidal anti-inflammatory drugs such as aspirin and ibuprofen, and the use of cigarettes and alcohol. We’ve been trying to get Tyler to kick his addiction to cigarettes, but it’s been tough. And now he’ll have to lay off the alcohol as well. No, actually Tyler has the pylori infection. The doctor said he could’ve picked up these bacteria a long time ago, but it just didn’t “present” until he finally started having terrible ulcer pains.
Treatment will consist of a new medicine regimen that I’ll incorporate into their already scheduled out day. Tyler will also go back on his Nexium as well. He’ll be taking a medicine that forms a protective barrier over the site of the ulcers, Nexium to reduce the amount of acid the stomach makes, and two antibiotics to treat H. pylori.
The online medical sites stress that to prevent the duodenal ulcers from reoccurring, lifestyle changes are recommended so I’ll be switching out Tyler’s morning coffee gavage to decaf!
We hope to see improvement in a couple of weeks. He’ll have a follow up endoscopy in about 3 months to see if the ulcers have been eradicated! I am glad that his problem isn’t allergy related – I feel good about being able to continue with his feeding therapy and knowing that I don’t have to be concerned about food types.
Whew…one more hurdle to tackle! We can do this…I know we can!
Tuesday, November 10, 2009
Hmmmm...I see Tyler in front, Parker behind him, the play farm on the right -but what's that ON the farm? Could that be Parker's diaper? Then what's covering Parker's parts...oh, his hand! Well, that'll absorb just fine, won't it? NOT!
Thursday, November 5, 2009
So the big question is: what are the white spots up and down his esophagus that she thought could be allergy related?
Our heads are spinning right now and I'm trying not to go to a dark place. Argh!
So now we get to take the boys to the Pediatrician in a few minutes so they can get their first of five RSV shots and hopefully 2nd round flu shot. I'm not sure if they'll be able to have the flu shot because they just had the H1N1 shot on Monday, we'll see!
I hope we get some useful information on Monday or Tuesday. I'll let everyone know!
Gut wrenching feeling...
Sunday, November 1, 2009
But Halloween 2009 will be forever ingrained in my mind. Our little Pooh and Tigger experienced their first Halloween celebration! John and I drove the Bubbies around to family and friends and then found ourselves at home handing out candy and trying the keep the Bubbies from escaping out the front door. Finally John took Tyler outside to see the various costumes and people running around the neighborhood and we realized that he was in his element. Tyler ran around with wild curiosity, acting as though he'd eaten a bag full of candy. No sugar high needed for Tyler Thompson - his excitement is al natural. Next year is going to be even more wild and fun with these two.
You know, these are the moments I dreamed of and it makes me teary just thinking about how dreams can come true!
Parker Pooh and Tigger Ty say "Happy Halloween!"
Tyler displaying his "Happy Birthday Aunt Teresa" hat.
This is the funniest video! OBVIOUSLY Parker was thrilled with his costume, not! It was just the belly actually - he couldn't walk with that HUGE Pooh belly! I think he was mad at me because he wouldn't look at me for a while - torturing mommy for his brown nose and Pooh belly! Isn't that what kids are for...to dress up in funny costumes and be amused?
Here's just random footage of Park and Ty in costumes. I didn't get much footage of them - just too much excitement!