Tyler's area was a little cool so the nurse put a blanket over his crib to warm up his area. He's got his only little cave. The pic is dark because it was taken at night, which is normally when I've been able to go see my little sweet guy.
Tyler has been a challenge to figure out. Last week when we were discharging Parker, we discussed bringing Tyler home a few days later. Well, since then the little guy's feeding has gotten so bad they had to reinsert his gavage tube. And yesterday was an all time low for the amount of food he would take via his bottle. This does not bode well not only for his discharge, but for his future feeding as well. We've been told that some babies take a long time to "get it" and he just needs time. BUT he "got it" and lost it, that's another story.
We've determined that he has reflux and in studying the symptoms of reflux, it looks to us that he is having a hard time eating because it hurts. He arches his back and refuses a bottle, even if he's hungry. This isn't a case of him not "getting it".
We've requested another feeding evaluation from their "expert" and are looking forward to a call from Tyler's primary resident who should be getting back to us with a "plan". There is NO reason why this almost 10 pound (yes, that's right almost 10) baby, who is going home on oxygen without problem, should be sitting in the NICU and not at home. Do I seem frustrated or what? Grrrr....
It's been the most challenging time to have Tyler in the NICU without his brother. It's different having one in and one out - an unfair situation, that's for sure!