Not much to say - the boys are pretty much the same. This is why we've requested a meeting with Pulmonology and the docs, which will hopefully happen tomorrow. We just haven't seen progression this last week, which is fine, but we'd like to know if there is a "master plan" for the boys somewhere. Tyler is still irritated as ever at his CPAP, we'd really like to see him get off that thing! And Parker's hernia is getting larger daily and we know he will need surgery soon, which means he'll have to be re-intubated. We aren't looking forward to it, but know it has to happen...soon? So, should our "pow wow" take place tomorrow we'll have much more to say (assuming we get answers that extend beyond "wait and grow").
Today was a holding day for the boys. They are really getting used to being held and Parker is even demanding it now! Rut ro...we're creating a snuggle monster! BOTH boys are now eating (well with an ng tube) 60 ml's - and Tyler has finally HIT the 7lb. mark! Woo hooo big boy! Parker is getting there at 6lbs, 8oz. This is a very good sign and DOES show progress, so there is some movement at least!
The nurses keep mentioning that the boys will soon need to learn how to eat. They have to master the suck, swallow and breathe technique that is natural for full-term babies, but is lost with micro preemies. Some babies will pick it up quickly, while others will struggle, only to extend their hospital stay. As soon as they move to a low flow cannula they will begin "practicing". I can't wait! All for now.
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The whole "getting reintubated" after surgery is never fun, for neither the baby or us parents! Lowell had been off nasal canula for weeks and week when they reintubated him & he was then intubated for a couple days (i think two, maybe three), that was sooo hard! I think it's harder then when they were intubated the 1st time, due to them being bigger and realizing they have done well without this tube down their troat!! (little micro preemie FIGHTERS weve created!!) :] I'm totally here if you have any questions about the future, although some things are different between our little ones, i'd still love to help!
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