August 19 9 pm
So looking back at my last two blog entries as well some of the replies it became evident that Daddy needed a little time to re focus and remind himself that things are still going pretty darn well:):) The glass is definitely half full! Things could definitely be a whole lot worse. This new vision was definitely aided by the good news we got today. My son's poor little nose is no longer the victim of the CPAP monster!!! That's right, if you look at the pics below you will actually be able to see Tyler's nose!!! The day nurse came on today just after 7 am and was just not happy at all with the way things were looking. His poor little nose was just getting worse. When the doctors rounded at 8 am they decided they would take him off of the new CPAP device and put him on nasal canula.......yeah......and there was much rejoicing........parades were conducted.......debts forgiven......love and happiness permeated every crease in the fabric of time.....okay, so I'm exaggerating a bit......or maybe all of that was just going on inside of Heather and I......either way it was exactly what we were hoping for (thanks Jim for the offer, but, for now, you can store your torch and pitchfork.....but I'd like to keep them on retainer if possible). For those who may not remember one of my lengthy medical descriptions let me sum up: the CPAP has to create a seal and provides Constant Positive Airway Pressure......the prongs that go in the nose are stiff and rigid and just plain hurt.......while the cannula he is now on are much softer and more supple and don't require a full "seal" to function......all this adds up to a much much less invasive and damaging device in little Tyler's nose. He is on high flow cannula which still provides positive air flow, just without the intensity and without the need for the seal. ohh,it also moisturizes the air he is being given......he's on 5 liter for those who may know what that means. He is reacting very well to it (and by very well I mean he is still annoyed by it, but it is now just an annoyance that he can deal with and may hopefully be able to get some rest with.) His O2 requirement has dropped and Mommy and Daddy both got to hold him today. Parker remains in a limbo state. They are still employing the wait and see strategy since his O2 requirements have not really changed that much. They did however, increase his feedings so he continues to process mom's milk and continues to put on weight ( he got jealous of the fact that Tyler beat him to four pounds and lashed out by calling his brother a fat milk hog.....I had to intervene. an teach Parker that we don't use words like that.....if he was frustrated that physical violence was the best way to solve these matters..........then Heather slapped me and told me that wasn't funny!!!) All in all, I just need to remember to remind myself that, all things considered, we have still been blessed with two beautiful baby boys.....and although they are being challenged a lot, they have avoided some huge pit falls, they are growing and developing, they have cute outfits to wear, and that they are adored by every nurse that gets the privilege of working on them cuz they are so damn cute!!!! The Thompson twins are alive and well and living in the NICU!!
Tuesday, August 19, 2008
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2 comments:
Alive and Well! You bet! Eight weeks old. In no time it will be eight months, eight years, eighteen years. I always hear parents say,"It goes bye so fast...". I could scrapbook an entire 12 x 12 album for thier first eight weeks. What an adventure. I say adventure because "The Thompson Twins are Alive and Well!"
Love, Natalia
Shannon's friend Jessica here again- I just wanted to let you know I enjoyed your blog today- especially going back and looking at your earliest blogs-it's such a dramatic change to see where they are today. I'm 28 weeks pregnant today and to look at those first pictures of Parker and Tyler is such a reality check. Thank you for your stories and updates- it's such a blessing to be able to read about these strong little boys everyday!
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