July 30 10 pm
So much has happened over the last few days that the boys needed some time to acclimate to all the new things that have been happening. Tyler actually had a change made to his oxygen tube. We found out that there are basically three steps in the nasal cannula process. He began on the middle step and needed to be "backed off" a bit to the first step. He is currently on a "high flow" tube. The actual prongs in his nose have not changed, it is just that he is getting a higher flow of oxygen through a larger tube connected to the machine. Once he acclimates he'll go back to the middle setting then to the lowest. This process will more than likely take a while. It's not really a set back per say. We have always been told that once off of the steroids the boys would likely have some slow downs or minor setbacks. Well, Tyler was doing so well that they discontinued his steroids very early. This set back is more than likely due to that in conjunction with him just needing some time to get used to everything. Parker remains on CPAP with a peep of 7+. He had a little bit better of a day today. He will most likely finish out his steroids and remain on CPAP for a while before he moves onto nasal cannula. Every day that they avoid having to be reintibated is a successful day, so we remain happy with where they boys are at. They had a good twin day today. They were both wearing the same little outfits!! Heather and I have both agreed that there will be times we dress them alike, but it will be the exception not the norm. However, today it was hard to not fall in love with how cute they both looked sporting the same digs. I over heard Parker saying..."You know the difference between you and me Tyler......I make this look good!!!" Cute pics below......cuz I know you'd all prefer to see them over my ramblings:):)
Wednesday, July 30, 2008
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2 comments:
Amazing stories I hear from reading your entries, I am so glad things are positive and we are sending positive thoughts your way too. The have grown so much and are so adorable. How amazing to hold them so much, hopefully it will keep up and many more new things happen and more progress made.
Tammie Clark
The CUTEST babies in the WORLD!!!
LOVE THEM!
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