One Step Back....

June 29 5:40 pm

We kneew it would be back and forth with the boys......some progress and some set backs. Well it seems like we must have had our two steps forward cuz today we experienced our one step back. Both boys (yes they continue to mirror each other) had their PDA's open up again late last night. The tube in their heart that closed with only two of the three doses of medicine has re-opened. They were taking an echo today to confirm it, but all other signs and symptoms indicated it to be so.....so much so they suspended both boys' eating schedules until it closes again. They gave the first of three doses of medicine today in hopes that the second round of the meds will close it back up for good. If it does not they will both need surgery....more on that later if it becomes necessary. So today found the nurses constantly monitoring and adjusting their oxygen, and vent levels to keep the boys stabalized. They are doing a great job doing just that:) On a more positive note, Heather changed Tyler's diaper today which was really full of poop......the black tar (merconiam) type of poop. Apparantly he had pooped a total of 12 cc's (the nurses were pretty shocked at the vast amount) earlier in the day. His blow out diaper that Heather changed only added to that amount. So at least we know the food was working for the short time he was able to get it. Parker had a good poop as well. Not the extent that tyler did, but a good movement nonetheless. We left with Parker on his tummy sleeping peacefully and Tyler still a bit squirmy but still seeming to be relatively restful. I'll try and post some new pics we took:)