The Life and Times of Tyler and Parker

Hey, Where You Been?

2010-10-16T20:32:00.000-07:00

Oh...you mean me? Ha ha!

Yes, it’s been a while since my last post. I’ve often thought about posting pictures or writing a simple update on the boys but something pressing always took over and it never happened. I did start a blog post in August, but it was never finished or sent. I know that many of my fellow blog followers do see pictures of the boys and my family on my facebook page. At this point, I’m not sure who else is actually following our little blog anymore. But it continues to provide a journal for the boys and has been a nice resource for us. So until I find it completely useless, I will continue to blog as time and effort allows!

I know I said I’d post some pictures from our first road trip with the Bubbies, so that will be my priority. First I will update you on the boys’ medical and other progress since the last post.

Parker:
Parker is almost 100% oral to date! I say 100% oral because we are not gavaging ANY formula feeds. He is eating and drinking 100% of his daily calories – woooo hooo! BUT he isn’t really 100% oral because he continues to receive his pre and pro-biotics via G-tube and periodic prune juice or water gavages if he isn’t remaining “regular”. And of course we happily shove ALL of his medications through the tube when that becomes a necessity – the main benefit of having this type of access. Don’t parents of G-tube dependent children deserve some sort of ease is this regard? Ha ha! The BIGGEST accomplishment for Parker is not just that he’s eating solely on his own but that he’s eating without the use of appetite stimulants. A couple of months ago it became clear that Parker hit a plateau in his eating and we were either going to have to increase his dosage or discontinue it altogether. The drug made Parker sleepy and cranky – I couldn’t justify increasing his dosage when his eating issues were behavior-driven. So the decision was made to take him off the drug completely. The result: no change in eating; huge change in personality. It was as though his dimmer switch was cranked up. His dark, morose, and passive disposition became active, engaged and almost cheery. Parker is still Parker, don’t get me wrong. But what we didn’t realize was how tired and passive the drug was making him. After discontinuing the drug, Parker began verbalizing and participating more. We are so glad we decided to take him off the drug. It did what it was supposed to do – make him “feel” hungry. He’d never known that feeling before, so it was a necessary thing. But now it is time to move on and let him find his own normal eating habits/patterns.

So that’s where we are with Parker – he’s finding his new eating “normal”. His weight has been hovering around 26 pounds for the past month or so. Both he and brother have gotten taller so he’s really slimmed down. But the GI believes that when Parker’s body is ready to grow again and he NEEDS more food, he’ll begin eating more. We’ll see. The boy just doesn’t have a great interest in food and continues to eat because we request it, not necessarily because he wants it. Although there are those shining moments when he points to his highchair or the fridge and jabbers in his secret Parker language, “I am hungry”. These are mommy/daddy heart-warming moments when a whiff of “normal” blows by…ah, the smell!

Tyler:
Well, what ride are we on today? If Tyler were a roller coaster ride, he’d be the old wood one in Santa Cruz. You know the one that hasn’t changed in YEARS! Argh! The theme is…two steps forward, three steps back! A couple of months ago we thought things were looking up – fewer and fewer throw ups, resolved ulcers, no signs of reflux. As things were looking better and better, we began discontinuing Tyler’s reflux medication. No change was detected. We slowly began giving him larger boluses during the day, trying to increase his feeds. The goal is to eventually have Tyler emulate a regular food schedule - eating during the day and NO eating at night. Getting him off of his nighttime pump is a priority. We thought everything was going well when Tyler began throwing up again. We not only had to go back to many smaller gavages during the day but also put him back on his reflux medication. So we’re back to square one and holding steady.

The GI sent a referral to a doctor specializing in pediatric feeding disorders. The testimonials I’ve read from clients who’ve received her services have been overwhelmingly positive. Our neighbor has twins who are two years older than the boys and were also micro preemies. One of her boys receives services from this feeding group. The mother, Jen, says that her son, Aaron was barely eating purees when they started a year ago. Now he is eating almost all foods. It is an intensive in-home program that works. The only problem - will my insurance pay for it? Jen had to switch insurances and medical groups to get this feeding therapy on board. She switched EVERYTHING: pediatrician, gastroenterologist, pulmonologist…eek! This is how important this is – she had to do it or he wouldn’t be eating on his own today! So the referral has been submitted for Tyler and the doctor told me that Anthem Blue Cross has not been easy to work with lately but she’ll do her best with our request! I feel a battle brewing…I’ve been through this before! Wish us luck!

Tyler has had a rough week. We thought he caught a chest cold because he’s been throwing up with almost every gavage, started waking up periodically throughout the night, coughing and sometimes throwing up – and will throw up flemmy liquid that seems to be coming up from his lungs. We now suspect that Tyler’s ulcers could be back. Ugh. This would not be good. The last time he had ulcers we noticed severe reflux and lately his reflux has flared up again. Just slap my head now please – doh! So, I have been getting next to NO sleep at night because Tyler has been tossing and turning throughout night. I feel bad for him because he isn't getting a good night sleep either. John has been working like crazy because of homecoming this week and hasn't been around - and Parker has been waking up because of his brother! So we're a household of tired Thompsons!

Good news: next Tuesday we see the GI and will be able to discuss Tyler's symptoms with her at length. We really need to figure this out! Tyler certainly is a Neverending Story!

Good news:

The boys passed their Ophthalmology appointments with flying colors and were cleared of any signs of ROP (Retinopathy of Prematurity). The Ophthalmologist told us that she’s been working with UC Davis for six years and has never seen such a high number of clean ROP cases coming out of a NICU. Although we knew and saw that the boys were getting optimal care at UCD, it made us feel wonderful hearing that.

Fun Facts:
Tyler’s speech is coming along and he is talking in gibberish sentences, while peppering in usable words. It’s quite cute! He often starts out his answers with ‘no’, even if the answer is yes. His mimicking is spot-on, he now has to work on chaining his words to complete sentences. By the end of his last speech therapy session he was chaining “I want bubbles please!” It was music to my ears! And today he ran in the house yelling, "mommy! mommy! mommy!" Every syllable as clear as can be - no lisp detected. At the last consignment sale, I sold a bunch of the boys clothes and purchased some winter attire. One of my goals, besides buying clothes, was to find something for Tyler that just couldn't wait for Christmas – a drum. Drumming is Tyler’s passion – and his use of pencil drumsticks with furniture drums has been working out nicely. I was thrilled to find a complete Parents Choice drum filled with musical instruments for $9 and a single drum for $3! So a band has formed at the Thompson house and periodically Barney joins us! It’s pretty “sick”…take that however you’d like! Ha ha!

Parker’s speech remains a mystery although he talks wildly and passionately. He is so observant and loves pointing stuff out to us all the time – we just wish we knew what he was talking about! I’m sure his descriptions are much more colorful than mine! I am proud to say that I can decipher some words like “Barney”, “Gabba”, “daddy”, “mommy” and “bye”. Because we are all such idiots and can’t understand him (according to the look of disgust on Parker’s face when we don’t understand him), he’s gotten very good at sign language – real signs and his own, made up language. His comprehension is excellent, in fact he’s been pulling his poopie diapers off lately so we’re going to try putting him on the potty and see what happens. Any suggestions are welcomed here! On a less serious note, Parker has become much more physical and independent lately – it’s been nice to see. We finally visited a fairly new park in Roseville created exclusively for 2-5 year olds. It’s fully fenced in, the play equipment is low and safe, and the grounds are entirely rubberized. The first time we visited this playground, Parker explored like the “free bird” I’d never seen before. He climbed new heights on the multi-tiered structures, slid down slides face first, and tackled the swings solo. All big steps for this anti-change agent home body.

I think that’s a pretty good update! If I were better at keeping up with information, these posts could be shortened! Ha ha!

Here are some pictures of our summer fun - the more updated pics are found in the new header above. The boys two-year old pictures were hilarious and spot-on stills of their personalities! The I-Phones were the only way to keep two 2-year olds in the same spot, but it worked! I do have some other pics that I'll post at a later date. It took me three days to get this post together - eek! I just need to gett'er done at this point! Enjoy!

Summer Water Fun!

2010-10-16T20:28:00.000-07:00

The boys had such fun this summer playing in the water. Sometimes they'd wear official Elmo water-proof diapers, sometimes commando and other times a "spontaneous jump in the blow up pool or hose with whatever you're wearing" was necessary. They just loved it! One of their favorite activities was an elaborate water-activity-blow-up-thingy the boys got from their uncle Mikey and auntie Velear. Here are some funny pictures of their adventures playing in this darling water feature!

Tyler was immediately drawn to middle and stayed there the first time we pulled this out. He was loving it!

Look at his funny face - Tyler's pure bliss!

Drink please!

And then there's brother Parker who couldn't bring himself to step ONE foot in the water feature. Here he is explaining to daddy the risk involved in such an activity. I think he's also worried that the original nozzle (he's holding) may not make it back onto the hose. VERY big concern!

Parker is again discussing plans to reattach original nozzle to hose while daddy divides his attention between to clearly different bubbie activities.

One month later...Parker decides that water feature is not man's enemy and huge risk factor! But refuses to let go of his nozzle "issues".

Look - Parker is even sitting down! He's come so far...sniff sniff! Make a mommy proud little one!

Oregon Wedding

2010-10-16T20:13:00.000-07:00

Our first road trip with the boys was a blast! My little brother, Mikey and his wife Velear were married in Oregon in July. It was our first long drive and staying in a hotel with the boys as well. Thankfully we over-packed because we ended up needing EVERYTHING! The weather changed from warm to cold and our eating child, Parker, decided that he'd rather give up food while vacationing. I guess eating just wasn't on his agenda. Thankfully I am married to a very smart man who thought this could happen and packed Parker's feeding pump and enough extra formula and supplies to sustain BOTH boys the entire trip. Whew...we needed that!

The drive was interesting - we left late at night and drove straight through from Roseville CA to Tigard OR. Actually, my husband drove straight through. I was the "talk and keep husband awake" person and navigator. The boys were fabulous in the car - they slept most of the time. At the hotel we reserved a mini-suite so the boys were able to have their own room. They were a little freaked out about the sleeping arrangements - we brought co-sleepers for them. But I think they were just so tired from the day's activities that they fell asleep pretty easily each night. John and I feel pretty lucky because the boys are really good guys. They are very well behaved and looking back, didn't give us any problems whatsoever.

I love this family photo (good one Katie Rose) - except I wish I didn't have the glass in my hand!

Waiting for the wedding to start - Parker is needing his mommy. To pass the time we are doing Parker's favorite thing...playing on mommy's phone.

This is an amazing picture because we rarely see Parker out kicking a ball! Here he is at the wedding running around kicking a ball - are you kidding us? What a shot!

So cute of Tyler and the beautiful bride - Auntie Velear!

Tyler "Elvis" Thompson! Okay, so I know Tyler loves to dance at home in front of the TV during his morning shows, BUT...I NEVER knew Tyler was such a dance machine on the dance floor! Holy smokes! The music begins to play, everyone converges onto the dance floor, someone has my child (right?) and I hear "Wow, look at Tyler go!" I look out onto the dance floor and there is a circle of people gathered around the middle of the dance floor and in the middle of the circle...one Tyler Thompson dancing his butt off! I've never seen such pure joy is Tyler's face. I think he danced and laughed and smiled for 4 hours straight! John had to pick him up off the dance floor when he was leaving for the night! The kid was a dance machine I tell you!

The things you just don't realize about your children.

These are the moments you don't "get" until you have kids.

Auntie Karla: "We've got the boys, you two go ahead and eat!"
John and I will never forget how nice this was.

Our perspective is forever changed.

Washington Trip

2010-10-16T20:08:00.000-07:00

After the wedding in Oregon, we packed up the bubbs and headed to the Klein household in Washington where we spent time with old friends, their 5 acres and many animals. The boys had so many new experiences on this trip - including the following:

The dog was probably their favorite Washington activity. Here is Parker stuffing dog's mouth with toys...

...and Tyler pulling dog's tail...

...and Tyler having "words" with the dog (wow, the passion in their conversation)...

...and finally Parker trying to find dog through dog's special door!

Parker had the pleasure of experiencing his first face plant on the Klein's dirt road. Mommy had her first heart attack as she picked up a crying Parker whose faced was filled with blood and dirt and couldn't tell from where it was coming! The injuries totaled an egg on the forehead and a bunch of bad looking surface scrapes on his face. He actually healed within the week - whew!

Thompson Bubbies took their first boat ride! Tyler is looking fresh and ready to jet here, but then...

...zzzzzzzzz....what happened? Mr. Tyler zonked out during the boat ride! How cute is that? I guess water skiing was out!

Did I mention the Klein "toys"? Yep, the boys also road on their first four-wheelers! Okay, they were going VERY slow down the driveway.

Of course we can't forget the bawk bawks! Here's a great pic of Parker with the chickens (yes, they get pretty close) but Tyler was ALLLLL over them! He couldn't quit talking about the "bawk bawks"! The first night we arrived, we went out to watch the chickens being fed. Tyler was so excited about seeing chickens running around. He had a "Tyler ah-ha moment" and decided to take off and run down the Klein's driveway (a VERY long stretch). He ran alllll the way down and when he got down to the end, stopped, turned around and began running back. About half way down the driveway coming back I heard him begin screaming "bawk bawk! bawk bawk!" He must have heard the chickens or had a memory re-boot because the bawk bawks were once again his priority as he sprinted toward them! He's a funny guy!

My favorite picture from our trip - Tyler giving mommy a flower!

Marine World!

2010-07-25T22:30:00.000-07:00

Looking at the last posted blog, I mentioned that next entry would include pictures of water fun and Marine World. Since then we traveled up to Oregon and Washington and continued gathering pictures and memories! BUT...I promised Marine World and posted those first! Next water fun, and THEN wedding in Oregon and lastly, our trip to Washington where Tyler saw his first ever live "bawk bawks"!

I love this picture because it's so "Tyler" with his burp cloth hanging out of his mouth!

Here is mommy and the Bubbie taking a jeep ride ONCE around the jungle track. After a hot half-hour wait, could they at least compromise with another lap?

Family in the butterfly grotto! The Bubbie LOVED the butterflies - it had to be one of my favorite parts of the trip!

After our first day at Marine World, the Bubbies were exhausted...look at those sleepy heads!

Marine World visit #2 kicked off with Uncle Mikey and Auntie Velear at the Tiger show!

Grrrrr......

Look! Tigers can swim!

Uncle Mikey and John took the Bubbies down for a personal and close up look at the tigers after the show. As Auntie Velear and I clueless chatted outside of the arena, they had an intimate viewing of one of the tigers - doh! Figures - and mommy wasn't there to take pictures! Grrr...

Daddy and Tyler enjoying the shows!

Auntie Velear, Uncle Mikey and Parker!

Of course we had to check out the butterfly grotto again!

Mommy and Parker on his first 'up in the air' ride - the helicopter!

Tyler on his first 'up in the air' ride with daddy!

Waiting for a VERY special train....

...Thomas The Train!

Tyler visits a friendly bat!

Becoming 2 Over and Over Again!

2010-07-01T21:18:00.000-07:00

The celebration never ends, if you're a Bubbie! The boys have been celebrating their second birthdays non-stop with a visit from Grandpa Schrupp and a visit from their Grandma Thompson, Uncle Bob and Auntie Kristin. Below are some highlights on the continued birthday extravaganzas!

A quick update on Bubbie health: Tyler's stomach x-ray showed blockage in his small intestine so we put him on a two-day regimen of magnesium citrate to clean out his system. After two days of massive diapers, Tyler's daily throw ups improved drastically. He also started a new steroid, Entocort, a couple of weeks ago so we're not sure if it's the resolved blockage, the new drug, or combination of the two. Either way, Tyler is improving (we think). Of course that doesn't mean he'll miraculously begin eating any time soon. Tyler's oral aversion is thickly ingrained into his being - this is a looooong journey folks!

Parker continues to eat on his own but not without bribes, patience and continued use of his appetite stimulant. Right now we are only gavaging water and medications into him during the day and hand gavaging one bolus of formula before he goes to bed at night (if he didn't meet his calorie minimum). We've come so far with him, I really can't complain about our tactics!

Coming soon are pictures of Bubbie water fun and Marine World trip! Until then, enjoy some more 2nd Bubbie birthday snaps!

Wow...look at the HUGE balloon from Grandma Thompson!

The boys can't get enough of this balloon - in fact, Parker tried to take it outside yesterday! Thankfully I caught it just before it traveled off to another two-year old in the next county!

Tyler got a ball...one of his all time favorite things!

We know what Parker likes...books!

Here's Auntie Kristin showing the boys their new tiger bubble blower! Quite the Cinderella moment...I should hand her a bucket and dish rag to clean my floors!

Little chocolate decedance cakes were enjoyed by the Bubbies (hum...well, maybe mommy and daddy)! Ha ha!

Okay Parker, if I HAVE to take a bite I will! Tough job...licking chocolate and cool whip out of the baby's hands!

Grandpa Schrupp attempting to read to BOTH Bubbies - good try grandpa!

Daddy and Tyler check out new Dr. Suess board books - fun fun!

Parker is intrigued with new books. Go Dog Go! is already a favorite book - a dog party in a tree? Can it get any better than that?

Happy 2nd Birthday and Bubbie Update

2010-06-24T00:00:00.000-07:00

Has it really been a month since I’ve updated this blog? Where did the time go? So MUCH happened in May and June but first I must recognize the most important thing about today: HAPPY BIRTHDAY TYLER AND PARKER!

It was two years ago today that my little angels were whisked into this world, earlier than they should have. I remember how scared we were and what “lack of control” really meant. I was grateful for my family and unsure about our future. The physical pain was piercing but temporary, the emotional pain was indescribable. The day will forever be seared into my brain. The following 4 ½ months in the NICU will always be remembered as a foggy journey through machines, wires, tubes, tests, alarms, hand sanitizer, the pumping station, and life and death moments. Some memories are filled with joy, hope, and laughter, while other moments brought shear terror and heart-stopping panic that you want to forget, but just can’t. The saving grace is that these memories are slowly being pushed aside with new, relevant and more important topics like the boy’s obsession - Yo Gabba Gabba, their new manipulation tactics, or their love of bath time.

So where are we NOW, two years later? We’ve come a long way baby!

Our 1lb, 10oz, and 12.75” long first born (by less than one minute mind you) Tyler Johnathon is now 26lbs, 12oz and 33.5” tall. He has been running around like a track star for quit a while now and climbs better than most monkeys. He climbed into his highchair the other day and can climb out of his crib but doesn’t because he’s actually obeying our request, which is odd. Tyler’s speech has improved tremendously in the past couple of months and he is expressing a number of words and sounds. His imitation skills are amazing and when he pays attention (that’s key, he also has the ability to get distracted) he is able to repeat what you say to him. Tyler has been spending more time sitting and reading books lately – in fact at bedtime, Tyler sits on my lap to read books with me. He used to run around and explore during book time, or just didn’t stay still long enough to finish a story. It’s been nice sharing stories with him. For his birthday he received a key board from our So CA family that plays cat music – yes, it’s shaped like a cat, sings cat songs, the keys even sing “meow meow” if you like. It’s enough to drive a mom CRAZY (btw: Thanks Brian, Christine, Lindsey & Alyssa)! Well, Tyler loves this thing and it is able to capture and keep his attention for half an hour at a time! A few months ago I’m not sure he could’ve found an activity to do that – so whether it’s a maturity “thing” or toy “thing”, it’s a great “thing”!

Our 1lb, 6oz, and 13” long Parker Duran is now 27lbs, 2oz and 33” tall. Parker’s physical abilities have grown in leaps and bounds. A few months ago we purchased a play structure for the backyard that includes a couple of small slides. As the boys began climbing all over the furniture this winter, I knew we needed to find something outside that allowed the boys to use their amazing climbing abilities (oh yeah, and keep mommy’s sanity intact). The structure has really enhanced Parker’s strength, fear of heights and lack of control. He is able to climb up and down the structure with ease and slide down without fear. It’s done wonders for him! Speech continues to be a challenge for Parker but his verbal initiative has increased immensely. In fact yesterday John slid Parker down a slide that led into a new water toy the boys got from our Bay Area family (btw: Thanks Mikey and Velear) and Parker was so mad at John that after he got out, he stood outside of the toy, pointed his finger at John at just yelled gibberish at him for a while. He was clearly giving John a piece of his mind. The interesting change in Parker is that he’s become very independent and exploratory. While he continues to read books and “tinker” with the mechanics of objects, he’s currently not engaged in sitting down with mommy and reading stories on her lap like he used to be. Instead he will listen from a distance or pick one book, read a story with me and then continue on his way. Our multiple book marathons are just not happening any more. Change is in the air!

EATING & GI
Eating is such a HUGE topic in our lives that it really needs its own title. And because the boys GI issues are cause for said eating “issues”, it too shares this title!
I will begin with Parker this time!

Parker is officially eating and drinking 65-72% of his daily calories! Wooooo hoooo! AND Parker is no longer on overnight gavages! He is getting all of his calories during the day – no pump at night. We saw the GI yesterday and officially discontinued his last two hours of pumping at night. Our GI was thrilled to see the progress Parker has made in less than two months. She says this is certainly an exception. I’d like to say that Parker is eating with ease, but I can’t. In fact most of time we are using bribes to get the heavy calories into him – I’m sure he’s sick of avocados, but a tablespoon is 42 calories. So we play the “one bite of cracker for a bite of avocado” trick, the “pause Yo Gabba Gabba until you take another bite” trick, the “I’ll turn the page if you drink more” trick. Not ideal but we’d spend ALL of our time feeding Parker if we didn’t do something. The therapists tend to think that when his calorie intake is at 100% and he’s completely on track, we’ll be able to pull back on his manipulation and break the habit without too many consequences. Does it make it better knowing that he’s the one manipulating us? Ha ha!

Now Tyler – just get ready by opening hand, slapping forehead with said hand and yelling “doh”! So last time I blogged about Tyler’s GI issues he was having a reflux test. Well, the test results were inconclusive because it was supposed to be taken after a 72 hour break from the patient’s reflux medication. We weren’t told this and Tyler had had his medication 48 hours prior. So…all of that for not. Doh! The endoscopy results came back showing that the ulcers were gone but swelling had continued in the duodenum area. The GI put Tyler on a 5-day regimen of Prednisone, a steroid. This stuff made Tyler CRAZY, making mommy crazy with him! It clearly worked its magic and Tyler’s throw ups cleared up, but a week or so after discontinuing the drug his symptoms came back. We’ve since put Tyler on another steroid called Entocort which doesn’t seem to make much difference to his throwing up. At yesterday’s appointment the doctor suggested a stomach x-ray and possibly changing Tyler’s reflux medication. The only other option should these things not help, a G-J tube – a stomach tube that sends food directly to the intestine, completely bypassing the stomach altogether. This would allow us to feed Tyler at a higher rate at night so we wouldn’t have to gavage him during the day, when he’s throwing up (mainly a volume issue – he isn’t able to handle volume). Then we would only focus on oral feeds during the day. We’re just not sure if this is what we want to do though, it’s another risky alternative. So, right now we are waiting for the doctor to get back to us with the results of Tyler’s stomach x-rays from yesterday and give us the green light for this new reflux medication. We’ll go from there…that’s all we can do! Until then, Tyler sits in his highchair and takes licks of purees and other liquidy foods. If he gets an unexpected crumb or chunk…look out, here comes a vomit volcano!

Saturday we had an intimate Yo Gabba Gabba birthday party for the boy’s second birthday with my family. I promised John that this celebration wouldn’t include the 70+ guests that came to their first “Celebration of Life”. But come on, that was a special one – they’d only been off oxygen for six months at that time! My challenge was creating a Yo Gabba Gabba good time – har har! I think the boys were totally confused about what was going on but had a blast! Here are some pictures of the day, enjoy!

Happy 2nd Birthday Tyler and Parker!

2010-06-23T23:14:00.000-07:00

On the door as people entered.

I made this for the refreshments and for our party favors - sugary cookies with cookie cutters attached.

John and I made the bold decision to go to Marine World the day before the party rather than prepare. So these Muno cakes were made at midnight! I decided to go with a variety of desserts rather than one big cake.

Are these the funniest cakes you've ever seen? You should have seen me trying to figure out where to stick bumps. My only reference was the cover of the Yo Gabba Gabba video - pretty funny! I'm not sure what the boys made of them!

Because you can't buy Yo Gabba Gabba stuff in the store I pretty much created most of it. These are picks I made to stick in the cupcakes - and ended up sticking everything I could get my hands on. If the toilet paper wasn't so "sturdy", it would've been "picked"!

Here's our food table complete with corn dogs and mac & cheese to compliment the roasted chicken and salad. Funny thing, the corn dogs and mac & cheese were wiped out, chicken and salad...not so much! What happened to everyone's diets?

Tyler was having sooo much fun!

I don't think any of the pictures show the boys shirts very well - rats! I created the design and John screened them - they have a faux Yo Gabba Gabba logo on top with Muno in the middle and their names on the bottom. We saved them for the party and the boys just love them!

Here's Parker giving the camera his usual "look"!

Look at that cute Parky face - couldn't you just squeeze it tight?

The excitement is brewing...

Yes, we had pinata fun! Actually I did not make this - it was actually given to us by someone who ordered one for her 2 year-old's birthday but received two instead - so she gave us her extra. Okay, we'll take it! And boy was it a blast! The boys didn't quite know what to do, but had a great time any way. I think the adults had a little more fun as they ended up taking turns! I think there is secret footage somewhere - uuuu hum!

Look at Tyler discussing his shot with daddy.

It's cake time and the Bubbies are just not sure about this cake stuff! For some reason I didn't get shots of the boys all cakey - but I know I got video!

After getting cleaned up the boys ended up in pajamas - oh well! Time for gift opening - Tyler loves balls!

I think this was a favorite thing of the boys - the musical Tigger card. Hum...maybe it was a favorite of mommy and daddy's! Ha ha! We were pretty excited to sing the song!

Here are some of the party animals!

Okay cousin Christopher...how did Muno get on a beer bottle and what preschool lesson are we learning here?

Peek A Boo!

2010-05-20T10:57:00.000-07:00

I love seeing and hearing the boys play together. The older they become, the more often these moments occur. Of course, moments of pushing, shoving and stealing have also become the norm with these two - ugh! Well, one day daddy caught a new one on tape - the boys having a spontaneous game of peek-a-boo. It's a little low-volume, but if you turn your speakers up, you'll hear outrageous baby boy laughter. I just love this sound! And it makes me ignore the fact that they are destroying my curtains - ha ha! Some things are just worth the sacrifice! ;o)

Enjoy!

Eating Challenges and Reflux Tests!

2010-05-08T20:38:00.000-07:00

What a week we had – full of eating challenges and medical procedures!

Last Wednesday kicked off the beginning of Parker’s feeding challenge. We quit his day time boluses of formula and gave him solid foods throughout the day. We also stopped his evening gavage at midnight, giving him only 4 hours (versus 8 hours) of formula gavaging. His over 1000 calorie/day diet was compromised by only forcing 340 calories of formula into his system – with the hope that he would suddenly feel hungry and begin eating ravenously!

Well, it didn’t quite go that way. Day one: 118 oral calories total. Day two: 146…yay he’s gaining! By day eight: barely 200 calories. Hum…he just wasn’t eating enough food to sustain his weight AT ALL! Knowing that Parker was losing weight over this lack of intake, we took him in for a weight check. Sure enough, Parker lost around 1 ½ pounds in only eight days! Eeek!
The nutritionist met with us and helped develop a new, higher calorie plan – WITH the addition of an appetite stimulant. We were happy to hear that Parker was now old enough to try a stimulant. His first day on this miracle drug was a bit trying! The drug acts similarly to Benadryl – can make you tired and sometimes hyper. Nice combo! Parker was a TOTAL grouch and slept for three hours that day! I guess I needed the break after dealing with his attitude for hours – ha ha! BUT the MAIN change was in his eating! He has eaten over 500 calories/day the past two days. I am absolutely hopeful that his "switch" has been turned on and soon we will discontinue his formula pump altogether! Happy day!

Now medical procedures with Mr. Tyler! Friday Tyler had another endoscopy to check on the status of his ulcers. Unfortunately the doctor said Tyler’s system looked fine – ulcers gone and a healthy pathway exists. I was hoping the doctor would come back with answers to why Tyler continues to wake up at night, screaming in pain – or why he can’t take more than 50 cc’s of liquid before throwing up (and sometimes throwing up with 50 cc’s). But no, nothing. Now it’s time to begin the process of elimination game where we test for anything that might cause these problems. Test 1#: reflux test. Before leaving the hospital Tyler was placed with an NG tube that tracks reflux and sends a message to an electronic tracking device. So Tyler came home from the hospital with an NG hooked up to a machine the size of his gavage pump. The memories came flooding back - I had visions of when Tyler had his NG tube. The tape used for the tube ripped off some of his facial skin – JUST like it would when we were feeding him through his NG. Déjà vu FOR SURE! Grrr...

This morning John ran the tracker back to the hospital where specialists will look at the results and determine the extent of Tyler’s reflux. Maybe this will tell us something – or not. All I know is that we have a LONG road to forge with Tyler. I think when it comes to his eating challenge, a simple stimulant will most likely NOT be the key his success. I have a feeling that ALL of mommy’s patience will be tested. But enough of that – right now I am focusing on the positive – I have ONE eating baby! Yippppppeeee!

Here are some pics and video of our adventures! Enjoy!

Parker was without brother Tyler on endoscopy day. Parker was having a cranky time - no brother, new medicine and mommy shoving food in his face every couple of hours. Attitude should have been the least of my worries!

Ugh, oxygen needs right after the endoscopy - makes my heart sink! No more oxygen please!

My first view of Tyler with his NG probe (via daddy's text). No more NG tubes - doh!

Both Tyler and daddy were a bit tired after their hospital adventures. They were ready to nap!

Tyler's face was ripped up from the tape - geez be careful when removing the tape people! Argh! Below is some video footage of Tyler and his equipment. We taped his mesh pack on him so he could move around. Can't keep an active kid down!

Tyler is in good spirits after not only having an endoscopy but coming home with tubes and monitors for 18 hour reflux monitoring. Good grief - poor little guy! He was actually is very good spirits, as always. Gotta love Tyler and his positive nature!

Parker with Monitor and Tyler with Song

2010-04-27T11:32:00.000-07:00

Tyler immitates words and actions wonderfully. Here is Tyler with the Developmental Therapist acting out a song. Look at how well he "snaps" when she gets to that part of the song. Although you may not see it, he is actually acting the entire song!

Okay smarty pants Parker, how do you know that the cord plugs into the monitor? I'm not sure how Parker "got" this, but here he is trying to plug in the monitor (he unfortunately has the wrong cord). I think his brain is on overdrive sometimes!

Bubbie GI Update!

2010-04-27T11:24:00.000-07:00

Cousin Alyssa from Southern CA visited during her spring break! The boys loved their cousin and wished they could have played with her ALL day!

I love this picture of Alyssa and Tyler - she cracks him up!

Grammie was a bit nervous with Parker standing on the back of the couch!

GI Update:

Today the boys had a very important appointment with our GI. This was the appointment to kick off their feeding trials! The last couple of months John and I have been packing calories into the boys to prepare for this challenge. Well, it worked! The boys are now 33” long and weigh 26 pounds, 8 ounces (Parker) and 26 pounds, 4 ounces. They are above 50 percentiles for weight to length. Yep, those G-tubes are doing the job!

The GI was pleased with their growth and gave us the green light to begin food trials with Parker. Tyler continues to have signs of reflux and is back on Nexium three-times daily. He also continues to throw up daily during some of his feeds. We made an appointment to have another endoscopy in a couple of weeks to look for unresolved ulcers or something else that could be causing issue with Tyler’s system. So we will remain at “status quo” with Tyler for now and begin trials after his medical issues are resolved. In the words of Winnie the Pooh, “Oh Bother!”

Parker’s food trial should be interesting. Our plan consists of discontinuing his formula gavage at midnight, then beginning a day of solids when he wakes up in the morning. He will ONLY get what he eats/drinks throughout the day (3 meals and 2 snacks) until late evening. I will also gavage water after each meal to ensure he remains hydrated. At the end of the day we will gavage one bolus of formula (100 cc’s) and put him on the pump to receive formula from 8pm to midnight. The plan is pretty aggressive and Parker will more than likely lose weight. BUT we’re hoping that he will begin to make the connection to eating and feeling full/better. Hopefully he will try more varied foods and practice his eating skills to decrease his choking. Right now he tends to choke on crackers/cookies or bites of food that he fails to fully chew. The OT and Feeding Therapist are working on improving his lateral chew. I have to remind him to chew, chew, chew, while he’s eating. I’m sure an audio tape of our eating sessions would amuse many!

So basically my life went from busy to busier! How is that possible? I will not just have ONE food tornado in my house, but FIVE? Doh! I look forward to warm weather when I can sit Parker in a little pool and feed him! Perfect right? He can get as messy as he likes and I’ll just hose him down! ;o)

All About Parker

2010-04-13T14:09:00.000-07:00

A few weeks ago I posted an entry showing Tyler wearing a variety of masks. It's true, Tyler already has a great imagination and will be fun for future "dress up" play! His personality reflects the "Tigger" name we've given him.

Parker, on the other hand, is a little complex. He's become MUCH more vocal and physical lately, but often times I still find him in quiet moments. Over the past couple of months my posting has become quite sporadic, but I've actually capture some great moments with both boys. Here's a little montage of Parker, complete with a fun video at the end! Enjoy!

He gets excited over things that surprise him, like this electric toothbrush.

He likes helping daddy, like here he's "helping" to fix his horse "Mocha".

He loves looking out the front window and watching children, cars and big trucks go by. Sometimes he's there for quite a while, just watching, thinking.

And the backyard is the same - looking out the window, watching the trees sway back and forth.

He loves it best when daddy is out in back barbecuing or working - he'll stand at the window, mesmerized!

And then there's reading. His love for books hasn't weaned, which I love!

His "what do you want?" look hasn't weaned either...humf!

Sweet moments like the time John took the boys for a wagon ride and Parker fell asleep, just makes my mommy heart melt. We just love this guy and ALL of his special gifts!

Here's the "after shot" of daddy trying to wake Parker up from his deep wagon ride sleep. Sorry buddy, you have to wake up so you can go to bed in two hours! Yes, that's the way it works!

No Throwing Rocks!

2010-04-09T15:27:00.000-07:00

The word "no" is becoming more and more popular in the Thompson household. I thought it was funny when people would say, "My child's first word was 'no'!" I can usually guide the boys out of their "no" action and into something else without issue. Well...times are changing! They are so active and head strong now that if I don't begin setting boundaries, they will tear this place up!

One of the hardest times to discipline is when the boys are playing in the backyard. I want them to run around and explore, but we have some areas that we need keep blocked off because of dangerous items. Until we get some adequate fencing we've put up folding tables and chairs to block areas of the backyard. Yes, it looks so pretty!

Parker is pretty good at responding to our requests and rarely "bucks the system". Tyler, on the other hand, does certain things to intentionally get a rise out of us. No kidding! He looks at us to make sure we're seeing him and goes directly for the "thing" we don't want him to do. What? Are you kidding me? Doh!

Well, today was a NEW world for mommy! I couldn't believe my eyes. There is a little retaining wall in the backyard that is filled with pebbles. The boys began grabbing hand fulls of rock and throwing them on the ground. John and I have been ON the boys about this area and set up one of the barricades along this wall to prevent them from getting up there and throwing rocks. This afternoon while we were in the backyard playing, I went in the house to quickly get the boy's water gavage [I've actually been trying to gavage and feed them outside when possible to make our day a little more fun]. When I came back outside I couldn't believe what I saw. BOTH boys on the retaining wall, throwing rocks and belly laughing like no one's business! What the...? I didn't know whether to laugh or be terrified that this is a future vision of the boys. BOTH working together to be naughty! AHHHH!

So what did I do? I secretly video taped them of course! ;o) What is a mommy to do? I am in trouble with these two, that's for sure!

Funny Video!

2010-04-08T10:15:00.000-07:00

I posted this on my Facebook page, but since some of you aren't on it, I thought I'd post this here. It shows Parker and Tyler walking around on Easter. My cousin Katie is in the background and makes a comment that the boys have figured out where the steps are in her house (there are two specific areas that are "blind" zones for babies, those with visual impairments and those who've had too much to drink). Just then Tyler takes a spill on the steps! All caught on video - too funny!

Enjoy!

Happy Easter!

2010-04-04T22:39:00.000-07:00

Getting a family picture is tricky these days! YOU try getting two 21 month year olds to remain still for 5 seconds! We had a wonderful Easter with our family - lots of laughter and running around! HAPPY 2010 EASTER TO ALL OF YOU!

Bunnie Bubbies!

2010-04-04T22:25:00.001-07:00

Therapist Kim decided to do a project with the boys this week - making bunny hats!

Notice how Parker is letting her do his project for him...hum...not looking good...

Tyler is obviously into the project, not a surprise! Again, Parker could care less.

Measure Tyler's head...

....put on the bunny ears...

....and hop, I mean scream, right!

Sorry, Tyler prefers the more authentic-looking bunny mask!

And Parker...measuring his head for fit...or not...

....distract him as we slyly put the bunny ears on his head...

....and they are off!

Parker: "Mommy, how many times do we have to go over this? NO hats, masks, wash clothes, fingers adorning your spit, or anything else you might put on my face or head!"

HAPPY EASTER EVERYONE!

Not So Quick Bubbie Update

2010-03-30T23:03:00.000-07:00

Today the boys had their 18 month assessment at the UC Davis MIND Institute. You may recall the boys having the same assessment on their 1st birthday - their 9 month assessment. Yes, the Institute refer to the boys adjusted ages, not their actual ages. I've been told once the boys are 24 months, EVERYONE quites adjusting for their age. Should be interesting when THAT happens. Hum...are they going to wake up on June 23rd and suddenly speak in coherent sentences? Are they going to begin eating? Are they going to begin potty training? We'll see...

Anyway, about today - the boys did very well considering they sat for very long stretches of time. I had Parker in one room and John took Tyler in the other assessment room. There is a HUGE two-way mirror on one side of the room so doctors, specialists, etc. can watch the session and observe the family interaction. I usually don't forget the mirror is two-way but a couple of times I wondered if anyone was the other side of the mirror as I was fixing my scarf and applying my lipstick. I should have gotten REAL close to the mirror and picked my nose - nah, might affect the Bubbies scores! ;o)

So the bottom line is that they performed at an 18 month level for their motor development (fine and gross) but are performing on a 13 month level for speech. Yes, they say very few words. Tyler's comprehension is at an 18 month level, while Parker's is at a 21 month level. Hum...this confirms that Parker knows EXACTLY what we're saying, but chooses to ignore us. He's a funny duck because as long as I can remember Parker has always hesitated before responding, answering, doing. I can always see his "wheels turning". "I'm sorry sir, you're hesitating to pick up your toys. Do you think you have a choice or something?"

We are in the process of fattening up the boys in preparation for their food challenges in May. We visited the GI because Tyler was having issues with his calorie supplement used to provide an additional 100+ calories/day. The doctor is excited about where the boys fall on the scale for weight to height (Tyler is 32.5 inches tall and weighs 24.5 lbs, Parker is now 31.5 inches tall and weighs 24.5 lbs - the same as his brother). Our current GI goal is to move all of their feeds to day time and discontinue their night time feeds. We discontinued their Duocal (calorie booster) and are mixing their elemental formula, Neocate Jr. to a higher concentration. Overall, the boys are getting between 940-980 calories each day.

In May, we will begin cutting back on the boys feeds to make them hungry. The goal is to help them make the association between feeling hungry and eating. Right now they don't feel hungry because we're pumping food into their tummies all night long and a few times during the day. I look forward to the challenge of getting the boys to try new foods and begin the process of moving them away from their tube dependency.

Lastly, the boys got their LAST shot of Synagis for RSV last Thursday! YIPPEEEEEEE! RSV season in this area hit HARD and late this year (usually November to March). The average number of doses approved each year is five so when we were told that a sixth shot was coming and approved, it was again a testament to our decision to sequester the boys this winter. We are assuming they won't qualify for the shots next year and will be in good enough shape to mix and mingle with the masses next winter. I can't wait!

Below is the sweetest sight! Last night when John went to check on the boys before heading to bed, he was touched to see Parker reaching through the bars of his crib to touch his brother. Me being the bad mommy immediately ran downstairs for the camera! Of course, hello! Look at the pictures below...he loves his brother (even though brother sits on him and steals his toys daily)!

Sweet sweet baby boy!

Tyler the Actor!

2010-03-30T22:48:00.000-07:00

This time last year Auntie Teresa gave the boys these AWESOME masks consisting of their favorite animals! Parker HATES hats, masks, mommy messing with his face...you get the picture! But he loves pulling out the masks and watching as mommy and brother become animals. I notice that Tyler doesn't necessarily enjoy stuff on his head/face either, but the desire to be noticed is much stronger than his discomfort of wearing a hat or mask. Over the past few months I've been able to capture some of Tyler's most outstanding performances. Yes folks, Tyler can do MORE than just balance objects on his head! Below you will see Tyler playing the following:

A puppy dog...

...mouse...

...cow (see the energy he exudes when getting into his part)...

...more cow?...and drama hands?...

...elephant, of course...

...and for our upcoming Easter holiday - a chick...

...and of course, bunny! Hop Hop Hop!

Luck 'O The Bubbies!

2010-03-17T23:25:00.000-07:00

So here's a little St. Patrick's Day comparison - it's actually pretty amazing how much the boys have grown in one year! We hope the luck 'o the Irish brings goodness to you this year!

Tyler Stands On A Rock

2010-03-15T23:37:00.000-07:00

This cracks me up! Tyler will climb up the jungle gym at the park, slide down both slides on his own and freely jump to you without notice - BUT here he is climbing this rock and you'd think he was rockclimbing the face of Half Dome!

Day At The Park

2010-03-15T23:23:00.000-07:00

The sun is shining...why not get out and breathe some fresh air? I know - let's go to the park!

The Bubbies love their wagon because it holds all their park toys - football, soccer ball, pail and shovel and hand sanitizer! It's a bad trip for mommy when we forget kleenex or her cell phone - doh!

Daddy and the boys using "grapes" - daddy's name for the hand sanitizer because it smells like grapes. Does this mean the boys will be confused when they're asked to eat some grapes - are they just going to smear them on their hands? Tyler is looking VERY into this clean hands thing!

Parker taking a moment from the action!

Tyler is trying his hand at basketball!

Parker eating daddy's hat!

Act Natural!

2010-03-08T14:39:00.000-08:00

I've been trying to find time to write about the boys the most recent doctors appointments and where they are weight/height-wise, but time always slips away! My goal is to get updated Bubbie information on the blog by the end of the week! Until then, enjoy this video of the Bubbies playing around the house. Actually they weren't playing, they were following mommy around, so I was HIGHLY encouraging them to go play. As you can see, it's getting harder and harder to get the boys in their natural states because they notice the camera more and more. Here's an example of this:

Practicing Our Manners

2010-02-26T00:00:00.000-08:00

Here are a couple videos of the Bubbies practicing their manners. They don't have a handle on spoken language but their sign language is progressing along - especially when they want something!

I know it looks like Tyler is coughing up a lung here, but I assure you he is fine. This is a daily activity, especially when he's sitting in his highchair with food smeared every where. He tends to get more "coughy" as the so-called eating session progresses. But he still needs to practice his manners, something in which he's extremely accomplished! The whining...not so accomplished. He needs to work on his fake crying a little more!

Parker is pretty good about trying new foods as long as he can feed himself. Try to put something in Parker's mouth - forget it! And he'll punish you the rest of the time by shaking his head "no" so you can't get any food near him. BUT he is drinking through a straw and can also drink via cup - but volume is really the challenge. Parker just can't take in a significant amount of calories to impact his weight. In this video he is pretty irritated because it's time to get down and he knows manners are a must!

What Bubbies Eat!

2010-02-25T23:12:00.000-08:00

The boys know that meal time is serious business. Actually they know that highchair time can be a lot of fun, but sometimes mommy makes a lot of "doh" and "argh" sounds as she slaps her forehead with her hand.

Thank you Tyler but EAT the popsicle, don't just play with it!

Look at Parker eating his popsicle dipped in cheese sauce. Even though he eats very little, his taste is already culinary at it's finest!

Yes Tyler, watch brother...take note...copy action...get a clue...help prevent mommy's hand from slapping her forehead again!

Staying in on a stormy day - what to do?

2010-02-25T23:02:00.000-08:00

Of course they've figured out that standing on their cars serves a much better purpose than riding them!

Maybe I should help Parker figure out that if he actually moved the car to the FRONT of the piano, he'd actually get to play MORE keys! Nah, I'll let him settle on the lower range for a while. ;o)

Tyler is picking up a few quick gambling games around the house.

Which cup is it under?

Tyler always congratulates himself...even before he actually finishes the game! Nothing like a little self induced positive reinforcement!

Family LOVE!

2010-02-18T11:06:00.000-08:00

This past weekend was filled with LOVE and family as we celebrated the engagement of my little brother, Mikey and his finance, Velear. With family in town from the Bay Area and Oregon, it was inevitable that the Bubbies would get some quality attention. Sunday warranted a visit from the cousins, uncle Mikey and soon-to-be auntie Velear. The Bubbies were in full form, enjoying every bit of attention from family members, including Olivia, their dog cousin. Here are some cute pics and a video clip of the boys with their family.

Bride-to-be and soon-to-be auntie Velear with Tyler - opening a Valentine's Day card from her and Uncle Mikey.

Cousin Kyle with Parker (with his all-too-familiar "give me a break" face on).

Cousin Jillian with Tyler - hug hug...kiss kiss!

Uncle Mikey throwing a ball with Tyler, although Olivia is MUCH more excited about it!

Cousin Brandon and Tyler are forming trail signs with rocks. Early outdoor education is VERY important!

Cousin Jillian teaching Parker "camera basics"! Teaching moments are everywhere!

If only Tyler was showing his "plumber's crack", but this is cute anyway!

Tyler: "Wow, look at this piece of grass, it's sooo long! There's so much to see outside!"

Parker: "Am I the only sane one around here? Heeeeeeelp!"

Video of the boys visiting with Olivia - they aren't used to LIVE animals...obviously! Parker is so excited at the beginning of this video, just cracks me up! And watch Tyler imitate Jillian as she rubs Olivia's tummy...monkey see, monkey do!

Allergies, Shots, Dehydration and Weight Loss - Oh My!

2010-01-30T14:53:00.000-08:00

Yes my dear Parky, you have EVERY right to whine! You had a hard week - let mommy tell everyone what happened.

We've had quite a week, filled with those fun little "challenges" that come with being a parent. Our first hurdle was during "eating time" when Parker began breaking out all over his face after eating cinnamon apples. I couldn't believe what I was seeing! I've given him the SAME apples with the SAME spices on them before without incident, so what happened? I quickly cleaned him up, removing all of the apple and cinnamon remnants from his skin. Slowly the red, puffiness began going away. He finished by eating some macaroni & cheese and even had some apple juice (which Parker loves). Obviously I discontinued the apples & cinnamon until I talked to someone about his breakout. A couple days later I consulted the Feeding Therapist who immediately responded that she's seen a number of kids break out from DIRECT contact with cinnamon powder. He might be fine if it's mixed into items, but she's seen breakouts from direct contact on the skin. Good to know!

On Wednesday the boys had their next dose of Synagis, the shots for RSV. These shots are hard for us and the boys because there are TWO shots, one per leg, with HUGE needles! Tyler bruises after these shots and I think they're painful because both boys cry longer than they do with flu shots. Poor guys! The dosage is based on their weight, which we were anxious to see because the last time we weighed the boys BOTH had lost weight! Well, to our surprise, the boys HAD lost weight in the three weeks since weighing in on the Pediatrician's scale. ARHG!

On Friday we were scheduled to go in for a weigh-check at our GI's office. I got the boys up from their night's sleep and could smell that wonderful, sour throw up smell just rolling off Parker's sleeper. When we got downstairs, I noticed that Parker was acting lethargic and tired. As I got the boys ready for their appointment, I noticed that the tube directly connected to Parker's button was dry - this is odd because it should be full of formula from the 500 mls that pumps through the tube all night. As the morning progressed, Tyler ran around like a happy, well rested baby while Parker laid on the floor. My mind began racing as I had flashbacks of his summer Rotavirus scare - this was looking a little too similar for my taste. I called John and explained what I was seeing - clearly Parker couldn't go to the GI for a weight check, he was in no condition to be in that office. BUT what happened and why was his tube empty? Rather than meet us at the GI's office, John came home. Upon further investigation he noticed that the medicine port on the feeding tube was open - and was most likely open ALL night. He went upstairs to find Parker's bedding soaked with formula. We've started taping down the medicine port on their tubes because they do periodically come open and the boys have started playing with their tubes. We concluded that Parker not only missed his 500 mls of formula, but probably lost ALL of the contents in his stomach, draining him DRY. Thus, what I was smelling was not throw up but stomach fluid. Nice, huh?

As John took Tyler to the GI for his weight check, I held Parker in my arms and rocked him. He wanted his momma - poor guy was so sad. We hooked him up to the pump and put him on a continual drip to give him 500 mls throughout the day. At night we gavaged a couple of bolus feeds and by the end of the day he only missed about 125 mls for the day. As the day went on and Parker got more liquid in his system, he began to bounce back. This morning Parker woke up looking and acting like himself again - running around with brother, screaming, whining, playing...whew! What amazes both John and me, is the fact that in such a short amount of time Parker went downhill. The boys seem so strong most of the time, but they are still so very fragile. Their little lives are so precious.

Oh...and yes, Tyler lost weight! Doh! We've been putting extra calories in Parker's bag at night, but both he and Tyler are still losing weight. I know that when babies become more and more active they can lose weight - I hope this is what the Pediatrician concludes when they have their 18 month well baby checkup in a couple of weeks. We'll see!

Below are some pics of Parker's adventures! Poor guy - this was not his week!

Parker's allergic reaction: you can see red puffiness around his mouth and even on his nose where food landed.

Visions of Rotavirus consumed me as I watched Parker sleep. That nightmare will haunt me forever.

We hooked Parker up to his pump and fed him formula all day long. He slowly came back to life and by the next morning was completely back to "normal"!

Parker's "get that camera out of my face" look!

Tyler looking sweet and innocent!

Happy Birthday Grandpa!

2010-01-25T18:07:00.000-08:00

John came home and chased the boys around the house tonight. As you can see in their birthday message to their grandpa, they are VERY tired. Maybe they'll sleep well tonight?

Happy Birthday Grandpa!

Baby It's Cold Outside!

2010-01-19T14:43:00.000-08:00

The conditions are tough outside - whipping rain, gushes of wind once again blowing over our Queen Palm. I'm not sure there is room around its base for more stakes! I actually love looking out of the warm house as the rain pounces down. The downfall to this blustery condition? The boys "cabin fever". "Where's our daily wagon ride daddy?" The boys have now discovered how to climb up on the couches and look outside. It's another dangerous conquered obstacle (both have fallen off), but I know they're building on a new skill set - AND have something else to occupy their attention during the day (mommy likes this).

So here are some random pictures - how we spend our indoor time! ;o)

Tyler playing with Plex!

Parker discovering life as a plant.

Oh the days of daily wagon rides with daddy!

Mommy and Parky doing some big-time cuddling!

Into and On Top of Everything!

2010-01-14T14:44:00.000-08:00

As the boys grow bigger and stronger, they do the most amazing things. The most scary, amazing things sometimes. I turn my back and Tyler is standing on our coffee table, Parker is sitting on the dishwasher door, Tyler is elbow-deep, digging into the Diaper Genie, Parker is opening all of the doors and getting into ANYTHING that isn't locked down! Would I notice as much if there were only one culprit? Is the fact that these are almost daily occurrences a good sign of growth or a sign of future insolence? And the fact that upon discovery I immediately think, "Where's my camera?" - I must take partial responsibility for these discretions (bad mommy). But when faced with a mixture of pride AND shock, what is a mommy to do?

Here are just a few fun pictures of the boys from the last few weeks:

Parker: "Where's the silverware basket? You know I love pulling out the knives!"

The boys are always together - for their almost daily wagon rides...

...or when we want that perfect "shot". The boys are often forced to be together.

But capturing moments when the boys choose to be together is such joy. Of course the boys can no longer play around the table, they must play on top of the table.

And when they choose to be sooo close, you can't help but feel your heart warm with pride and love. They really do love each other, don't they?

First Wagon Ride!

2010-01-11T16:20:00.000-08:00

Here's a funny clip of John taking the boys on their first wagon ride. I believe this happened Christmas Day, so we bundled them up with thick jackets - of course this doesn't prevent daddy from wearing shorts. The boys have never had such freedom and spent their first ride looking around in awe at the neighborhood and all it has to offer. What I love most about the wagon is that daddy has been taking the boys on wagon rides almost daily (giving mommy a good 45 minute break - to blog, take a shower, check my email - you know, those EXCITING things).

I love this video because it shows a tiny peek into John's mind. WHO would ever try to make a wagon go any other way but to PUSH it? Well...if there's a will...

FIRST Haircuts!

2010-01-03T14:59:00.001-08:00

Saturday started with a big bang when we took the boys for their first haircuts! It was a painful but needed task. Both heads needed a good "all over" trim so to be safe, we left that task to the experts. We went to this salon designed for and set up for children - "Jack and Jillybeans". It was clean, cute and truly delightful! The boys were actually VERY good - we were surprised at how well they sat in their cars and allowed themselves to be distracted by toy cell phones and videos! Ha ha! That's all it takes!
Here are some pics and a little video!

Tyler looking thrilled to be in the car!

Parker with hair in his eyes for the LAST time (at least until it grows out again)!

Parker sits in Police car while brother sits in the next vehicle over, a fire truck!

Tyler's first cut - not bad...

...until she pulls out a shaver to clean up his neck and around his ears!

Final Tyler results - can you even see a difference? Not much - his hair tends to naturally grow like a little boy haircut.

Parker was fine as long as he could push buttons on his nifty cell phone.

Parker looking at himself...what does he think?

Final Parker results! A little shorter then I wanted, but plenty of room to grow! We can actually see his beautiful eyes now!

FIRST Haircuts - the video!

2010-01-03T14:22:00.001-08:00

Christmas 2009 with Bubbies!

2009-12-28T14:28:00.000-08:00

What an exciting Christmas this year! It was a blast experiencing the curiosity and jubilance of two mobile Bubbies. I think John and I were just as excited to create the Christmas spirit and atmosphere for the boys as we were watching their reactions to it all. Talk about a fun time - and we realize that each year is just going to get better and better.

I posted three videos: the first is of the Bubbies looking at everything for the first time; second is of Parker riding his new horsey; and third is of Tyler NOT riding his new horsey - it's too funny! I have more video snipetts, but I'll post them later. I hope everyone had a happy holiday so far - I know the Thompsons did. Enjoy!

Boys are curious about these strange animals in their living room!

New wagon - because of Grammie we can pull the boys to the park rather than carry them. Daddy is getting tired of carrying 2-25 pound Bubbies!

Yes, the boys enjoyed the gifts, but they LOVED sitting on them almost better!

Wakey wakey - what's that in our living room? Santa came!

Parker, not sure of this "horsey" thing, actually allows daddy to put him on top!

Hum...I wonder if Tyler is ready to ride yet? Obviously not!

Tyler and Parker Meet Santa!

2009-12-21T23:48:00.001-08:00

What a fun time we had this weekend with family. Because we are holding strong with our commitment to give the boys another year of healing and growth during the winter, the Bubbies are not attending big family functions or going to the mall for a yearly "Santa sit". But we did go to Aunt Teresa's house and have a mini Christmas "bash" with the boys this weekend. Although is was nice to see everyone and let the Bubbies explore new surroundings, what made this night even better was Santa Clause! He knew the boys weren't going to see him this year, so he decided to join us for a little bit of celebration. I was sooo excited to see that our first Santa picture was finally going to happen!

Here are a few pictures of a fabulous holiday evening. Enjoy!

Tyler is getting used to Santa...

and runs the moment he gets his footing! So fast you couldn't capture him actually sitting on Santa's lap!

Parker checks out brother's ordeal from a distance.

Then Parker gets his torturous trip on the big guy's lap. Hey, not bad! Parker was looking pretty good with this Santa "business".

So of course we needed a picture with both Bubbies together! They're still pretty good, until...

We just HAD to push it with a family photo, didn't we?

Dinner Time!

2009-12-21T23:43:00.000-08:00

It was a lot of fun having everyone around the dinner table, including the boys. Aunt Teresa bought a couple of high chairs so the boys could be a part of the group. I think they were in heaven!

Parker ate his Winnie the Pooh toy, while Tyler...

...threw everything down on the floor and chewed on his burp cloth. He almost got the place mat, but I think we caught that in time! "Manners therapy" is obviously a continued service for the boys!

After Dinner Fun!

2009-12-21T23:35:00.000-08:00

Tyler and mommy having a "moment" after dinner.

Parker coaxes cousin Brandon into watching Yo Gabba Gabba on the computer. He's got a "party in his tummy!"

Parker is very content sitting with Grammie - especially when she lets him play with her camera!

Auntie Teresa and Tyler have a "moment".

Tyler loves the HUGE flat screen almost as much as he loves the remote! He'd be happy getting 20 remotes for Christmas - of course, you must add batteries because it's no fun if the buttons don't light up!

Bubbies are changed into their pj's for the ride home. Never a better time to get a shot of Parker in cousin Katie's reindeer antlers!

GI & Developmental Therapy

2009-12-16T23:08:00.000-08:00

Yesterday was an early morning GI appointment. We were VERY much looking forward to it because we hadn't seen the doctor since Tyler's endoscopy. Since then, Tyler completed his 2-week regimen on antibiotics, then we were told to DC the Carafate (coats the stomach and upper intestine) and see "what happens". Sure enough, after only a few days, Tyler started having symptoms again: crying out at night, throwing up at every feed, tugging at his Mic-key button. We called the GI and told the friendly nurse that his symptoms returned. They started the Carafate back up, but not the antibiotics.

The GI visit was actually one of the better appointments - we actually SAW the doctor, big plus, and got immediate relief for Tyler. When she gave Tyler his check up, she noticed that his button site was pink and irritated. We mentioned how much it'd been hurting him, but we attributed it to the ulcers. She said that it could be the Mic-key and recommended that we switch him to a Mini One, a silicone based product that is bendable and she thinks, more comfortable. So we tried it - the doctor switched out his Mic-key for a Mini One and "wah lahhhh" - he's healed! No more tugging, crying, complaining when we hook him up...nothing. We couldn't believe it!

Both boys were gaining adequate weight and the doctor seemed very pleased with their growth. Tyler now weighs 24lbs and Parker weighs 23lbs, 10oz. We talked about the new feeding specialist and our plan to get the boys eating, but no changes were made to their gavage totals. Hopefully our feeding specialist will get ahold of their nutritionist so they can collaborate on the feeding plan for both boys. The GI told us that she'd like us to push the boys on eating - she's fully supportive of challenging them because she thinks we're still in a good "window" for their eating.

So for now we are holding strong with Tyler's meds and their formula intake. We did take home some of the next level formula, Neocate Jr. We will probably make a switch next week after the Bubbies terrible colds are better. Not all babies adjust to the Neocate Jr. well, so we need to make the change when the boys are "clean" and healthy! And to boot, BOTH boys are cutting teeth like no one's business! Parker is grinding out his molars - he almost has ALL of his teeth through, amazing. Tyler is working on some teeth as well, so besides daily throw ups, we get the major drool factor again! Fun times guys...thanks!

Video Below: Every week our favorite Developmental Therapist, Danielle comes over to "play". The boys LOVE their time with Danielle and fight over who gets "play" with her first. Last week she brought a climbing mat - we are working on Parker's upper body strength and Tyler's...hum...looking at the video below, maybe patience? Ha ha!

Danielle and I thought Tyler would be ALL over the climbing mat - he loves to climb, run, yell...wouldn't you think he'd love being on the mat? Well, Parker ended up LOVING it! He went up and down, up the stairs, down the slide, down the stairs, up the slide...he was in heaven. It was just so cute seeing how much fun Parker was having. I caught a little video of the action - I would've caught more of Tyler but he didn't spend too much time on the mat. Interesting...

Enjoy!

Okay lazy Tyler, can you actually go ALL the way up and ALL the way down next time? No short cuts mister!

Could Parker have more fun? I just love these moments!

Morning Crazies!

2009-12-09T12:13:00.000-08:00

Wow, I've been so busy lately, haven't had time to get anything on the blog. I thought I'd post a funny scene that happens regularly at our house. The boys LOVE running around without clothes - and if I'd let them, no diapers. Here's an unedited, long video of the Bubbies running after each other. They get the "morning crazies" sometimes - they laugh, run, follow each other around, steal items back and forth - typical brother stuff, right? It's actually the funniest thing ever, but hard to catch on video. They tend to stop what they're doing when I begin taping, so getting the "morning crazies" on video has been difficult. The laughter and sound of their little running feet just warms my heart - I've dreamed of moments like these, it's nice to get them!

This scene below shows well rested, non-clothed, happy happy boys! I think I'm eating my morning oatmeal while taping so periodically you can hear my bowl and spoon "clank". Gotta multi-task! I'm sure shortly after eating my oatmeal, I folded laundry and picked ALL of the toys up from the floor - cough cough! ;o)

Enjoy!

Tyler's laughter is contagious, isn't it?

Baby Girl?

2009-11-29T23:04:00.000-08:00

Hey...who's that baby girl taking a sink bath?

It's just Parker! And NO, I'm not ready to cut his hair yet!

Happy Thanksgiving 2009!

2009-11-26T14:28:00.000-08:00

A Balancing Act

2009-11-24T09:59:00.000-08:00

I'm not quite sure where it started, but at some "desperate" time at home with the boys, I decided to introduce them to object balancing. I must have been having one of those long, "what time is it...no, it can't be" days when I started putting toys on top of my head. The reaction was amazing - the boys thought mommy was the BEST. Their eyes twinkled with excitement as their mommy threw toys and other household objects on her head. After a number of items were displayed, I realized the boys LOVED it most when the balanced items fell from my head, down to the ground. So that became the fun new game - mommy puts stuff on her head, they fall off, boys laugh - perfect time killer! So after a number of laughs and toys later, Tyler grabbed the bowl that had just fallen off my head and reached up to put it on his own head. What a smart boy! I (OF COURSE) encouraged this action and months later, he and Parker are now expert balancers. And because I think it's hilarious, I've captured a number of moments on film. Here are a just a few things the boys can balance on their heads. Enjoy the silliness!

Tyler is very serious about his koosh!

Parker knows he can beat this number '2' block!

Tyler: Come on amateur, you can do better than that bowl - you're beyond this!

Parker: Bubbles are a must and the mustache is a bonus!

Tyler: More of a cute picture than good example of balancing.

Parker: Cups, spoons and other kitchen items are favorites during sink baths!

Tyler: Cut out pumpkin from OT

Tyler: paci - not used to suck on, but good for throwing, chewing and of course, balancing on head.

Anniversary and Eating!

2009-11-16T11:08:00.000-08:00

Friday, November 13th was quite an exciting and busy day - in fact, it was sooo busy, I didn't have an opportunity to post a "Happy Anniversary" to Tyler Johnathon Thompson! November 13, 2008, Tyler was discharged from the NICU after 143 days of care. I remember how excited John and I were to finally get Tyler home. Parker had been home since the 30th of October and it was so difficult to leave Parker to visit Tyler - and leave Tyler to go home. The hesitation in Tyler's discharge was based on his inability to fully sustain the required minimum volume from the bottle. We basically convinced the doctors that we'd be able to manage a tight feeding schedule with him at home. Which we did...but for those who've been reading this blog since last year, you know that it was just the beginning of Tyler's eating issues. Little did we know! Now our big boy is running around the house, screaming at the top of his lungs, and harassing his brother. I'm not sure we EVER could've imagined this scene just 12 months ago.

Before you view the fun pictures of Tyler's homecoming, I have to share other great news from Friday. Our case worker from our insurance company called Friday afternoon to tell me that our feeding specialist was approved! I have been working on this for over 3 months and it's finally happening! This feeding therapist can make or break a child's ability to eat. Her techniques will not only assist in battling Tyler's gag reflex and throw up spells caused by food in his mouth, but reduce our timetable for getting both boys 100% oral. It sounds like I'm putting a lot of eggs in this basket, but I have faith in her and her approach. I know this makes more work for me, but I also know the challenge will be worth it in the long run!

Lastly, the boys had an assessment by CA Alta Regional Center on Friday. The good news is that the boys will continue to receive developmental and occupational therapies for at least 6 more months until their next assessment. Both therapies have been great not only for the boys, but me as well. Their approach to teaching the boys has been useful in my daily interaction with the boys as well. And they really enjoy the developmental therapist, Danielle, who's been with the boys for almost a year now.

So as you could imagine, November 13th was quite a day for progress in Thompson house! The only hitch in the excitement was Tyler's poor raw rear caused by his antibiotics. Poor Ty is pooping out a runny, orangey colored stool that obviously holds acidic qualities because his rump is just red and he cries and cries as we're cleaning him and applying gobs of Aquaphor. We heard that Aquaphor and Gold Bond baby powder work wonders in combination. We're going to try that tonight and see how it all looks tomorrow. We're not sure if the medications are helping with his ulcers and probably won't notice anything for a while. We look forward to seeing improvement and an ulcer-free endoscopy in 3 months.

Below are pictures of little Tyler on November 13, 2008, his day of discharge. Enjoy!

I think the doctors projected that we'd have difficulty with Tyler's eating so they plumped him up before discharge. Before he left that day he had a hearing test - looks like he's sleeping through it!

Tyler in his Cowboys going home outfit!

In the car...on the way home!

Brothers are together again! Parker was wearing matching attire in honor of brother's homecoming. It's hard to believe the boys were so tiny when they came home. The co-sleeper was perfect for them - they shared this bed for months before growing into their own cribs.

Yep, I knew it was just the beginning - you can see it in my face. Holy...I have two of them now! Well, it didn't take long to figure out how to carry two babies at one time...argh...and now two toddlers! Work those arms! I was in an exhausted fog for much of their first year, but I do remember being excited and over-joyed that they were both finally home! I just love my Bubbies!

Biopsy Results

2009-11-12T15:01:00.000-08:00

We finally heard back from our doctor regarding Tyler’s endoscopy biopsy results. The poor little guy has duodenal ulcers. What we thought were pictures of Tyler’s esophagus were actually pictures of his small intestine. Here’s some information I found about duodenal ulcers:

A duodenal ulcer is a raw area in the lining in the upper part of the small intestine (duodenum), where it connects to the stomach. Tyler has multiple ulcers, so the spots were actually lesions, or erosion of the area.

Normally duodenal ulcers are caused by family history, having a Helicobacter pylori infection, using nonsteroidal anti-inflammatory drugs such as aspirin and ibuprofen, and the use of cigarettes and alcohol. We’ve been trying to get Tyler to kick his addiction to cigarettes, but it’s been tough. And now he’ll have to lay off the alcohol as well. No, actually Tyler has the pylori infection. The doctor said he could’ve picked up these bacteria a long time ago, but it just didn’t “present” until he finally started having terrible ulcer pains.

Treatment will consist of a new medicine regimen that I’ll incorporate into their already scheduled out day. Tyler will also go back on his Nexium as well. He’ll be taking a medicine that forms a protective barrier over the site of the ulcers, Nexium to reduce the amount of acid the stomach makes, and two antibiotics to treat H. pylori.

The online medical sites stress that to prevent the duodenal ulcers from reoccurring, lifestyle changes are recommended so I’ll be switching out Tyler’s morning coffee gavage to decaf!

We hope to see improvement in a couple of weeks. He’ll have a follow up endoscopy in about 3 months to see if the ulcers have been eradicated! I am glad that his problem isn’t allergy related – I feel good about being able to continue with his feeding therapy and knowing that I don’t have to be concerned about food types.

Whew…one more hurdle to tackle! We can do this…I know we can!

They call him the Streak!

2009-11-10T22:55:00.000-08:00

Something strange is happening in the Thompson house - an aversion to clothes has commenced and I'm not sure why. Of course I have to document this strange occurrence and further investigate the "why" (and tuck the photos away for future embarrassment of two Thompson boys). Here's my latest proof of the nakedness running amuk:

Hmmmm...I see Tyler in front, Parker behind him, the play farm on the right -but what's that ON the farm? Could that be Parker's diaper? Then what's covering Parker's parts...oh, his hand! Well, that'll absorb just fine, won't it? NOT!

I'd recognize this bare naked tooshie anywhere! Could Tyler BE any happier right now? And yes, that's his diaper toward the upper right. And yes, he's running away from me - after all, I just might put that horrid diaper back on him!

Okay, this has gone too far! Who "pantsed" Raggedy Ann? Just take a guess - you have a 50/50 chance of getting this one right!

Mystery Diagnosis

2009-11-05T15:17:00.000-08:00

I just talked to the GI and she said Tyler's biopsy has not come back from the endoscopy he had Friday. When I asked about his allergy panel she said it was negative - showing NO signs of allergies. What? Are you kidding? So I asked her what she thought was wrong with Tyler (he's constantly in pain when he is being gavaged) - she said we'll have to wait until Monday or Tuesday and see what the biopsy produces.

So the big question is: what are the white spots up and down his esophagus that she thought could be allergy related?

Our heads are spinning right now and I'm trying not to go to a dark place. Argh!

So now we get to take the boys to the Pediatrician in a few minutes so they can get their first of five RSV shots and hopefully 2nd round flu shot. I'm not sure if they'll be able to have the flu shot because they just had the H1N1 shot on Monday, we'll see!

I hope we get some useful information on Monday or Tuesday. I'll let everyone know!

Gut wrenching feeling...

Happy Halloween from Pooh and Tigger

2009-11-01T15:13:00.001-08:00

Our first official Halloween was SUCH a blast! I say first official because last year John and I were just too overwhelmed to celebrate. Parker had just come home from the NICU the day prior and Tyler was still in the NICU beginning his non-eating journey. It seems like forever ago and because that period of my life is so foggy, I don't even remember Halloween in 2008.
But Halloween 2009 will be forever ingrained in my mind. Our little Pooh and Tigger experienced their first Halloween celebration! John and I drove the Bubbies around to family and friends and then found ourselves at home handing out candy and trying the keep the Bubbies from escaping out the front door. Finally John took Tyler outside to see the various costumes and people running around the neighborhood and we realized that he was in his element. Tyler ran around with wild curiosity, acting as though he'd eaten a bag full of candy. No sugar high needed for Tyler Thompson - his excitement is al natural. Next year is going to be even more wild and fun with these two.
You know, these are the moments I dreamed of and it makes me teary just thinking about how dreams can come true!

Parker Pooh and Tigger Ty say "Happy Halloween!"

Here are the Bubbies on their way out to some Halloween festivities. They had nice, newly-painted noses and whiskers that got more and more faded as the day went on. Reapply you say? HA! I put Tyler's on while he was sleeping and Parker was just tortured, so double torture in one day just wasn't an option. But I think our little Pooh and Tig are looking pretty cute, not to mention daddy too!

At the Rosie household, the Bubbies came adorning party hats to celebrate Aunt Teresa's birthday. Two trailblazing ladies were born on October 31st: Teresa Rose and Juliette Gordon Low!

Parker's head is just sooo big that "normal" size hats just don't fit. His Pooh hood was too small and wouldn't stay on his head. But that was the least of his worries - his HUGE belly was his concern. Poor Parker just couldn't walk very well. But he looked good - ha ha!

Tyler displaying his "Happy Birthday Aunt Teresa" hat.

Tyler LOVED Halloween - the visits to family and friends, seeing everyone dressed up in costume, being in costume himself - he just ran around all day and night. Today the Bubbies are pretty wiped out! We're trying to recover and get on schedule from Halloween and day light savings time. Overall I'd say the Thompson clan had a successful first official Halloween!

Halloween Video

2009-11-01T14:55:00.000-08:00

This is the funniest video! OBVIOUSLY Parker was thrilled with his costume, not! It was just the belly actually - he couldn't walk with that HUGE Pooh belly! I think he was mad at me because he wouldn't look at me for a while - torturing mommy for his brown nose and Pooh belly! Isn't that what kids are for...to dress up in funny costumes and be amused?

Here's just random footage of Park and Ty in costumes. I didn't get much footage of them - just too much excitement!

Endoscopies and Anniversaries!

2009-10-30T18:34:00.000-07:00

Today is a day to celebrate! Parker has an anniversary and Tyler had an endoscopy. Yes, very different celebrations mind you, but both terribly important to us.

First Tyler’s endoscopy: This morning Tyler and John checked into the hospital at 6am (fun 4am wake up call) for an 8am procedure schedule. Unfortunately the doctor was running late so John and Tyler got to hang out and play for 3 hours! It’s a good thing I dressed Tyler in his Tigger outfit this morning – I thought, “Maybe they’ll take it easy on him if he looks REAL cute!” Well, Tigger outfit and all, they STILL had a hard time catching his veins and ended up sticking him 3 times before the nurse “team” decided to go for the foot – success, finally. Poor little guy had such a hard time the “toy lady” came over and gave him 3 toys for each attempt. Looks like we inherited more bath friends. So right around 9am the doctor arrived and took Tyler right in – well, John and Tyler. They let John hold our little Tigger until he fell asleep and then they pushed them both in the procedure room and then let John hand him off. John waited in his recovery room for about 10 minutes and the next thing he knew, here was Tyler! It was that quick! He finally woke up and John was driving out of the hospital parking lot by 10am. The longest part was waiting – isn’t that always the way it is?
Bottom line: Tyler’s GI track looked good, not obstructed. The GI doc did see little white dots along the track though – she thinks they may be allergy related. She took a biopsy and they drew blood to test for ALL allergies. We can’t wait to find out what he’s allergic to because we’ve suspected allergies for a while now but couldn’t put our finger on what he could be allergic to – he only takes a few drugs and the most elemental, hypoallergenic formula. We looked all over the internet to see if anyone has had issue with our formula, Neocate, and low and behold I finally found information. I found a conversation between mothers talking about their baby’s intolerances to corn-based formulas, which are ALL powdered formulas, including Neocate. DING DING DING! John and I immediately thought, “He must have this allergy, that’s all it could be!” So…we are crossing our fingers that this mystery will be solved and that PART of his problem will be resolved! After all, he still needs to eat! ;o)

Parker’s Anniversary: Happy Anniversary our darling boy! One year ago today Parker came home from the NICU! After his 129 day hospital stay, Parker was finally able to come home with his mommy and daddy! I remember how excited we were to FINALLY get to take him with us – we’d waited sooo long! We knew it’d be a challenge with his oxygen and multitude of drugs, but we also knew that he’d be better off at home with us. The only bitter sweet part of his homecoming was the fact that his brother was not being discharged. Tyler’s eating wasn’t on track (just the beginning) and his oxygen dependency was a little too high for release. So Parker came home alone and would be there as the ‘only child’ for 2 more weeks. Looking back at the video and pictures, I am amazed at how tiny he was – where the time go? He was such a little sweet guy who rarely cried and when he did, you could barely make it out because of his rough, intubation-damaged throat. In fact Parker still talks with a “husky” voice - very cute for such a sensitive guy.

Wow, I can’t believe it’s been a year! It seems like so long ago, but at the same time seems as though they just came home. I do know that I was in a “fog” for months after they came home – trying to keep up with pumping, their meds, feedings, oxygen maintenance. I think I’ve just recently found my brain again, but not my memory. I think that’s gone forever! What’d I just say? ;o)

So...BIG day at the Thompson’s today! And tomorrow will be another BIG day when the boys enjoy their first Halloween! Last year’s wasn’t so exciting with Tyler still in the NICU and Parker being one day at home. Tomorrow will be a fun time for my camera, that’s for sure! ;o)

Below are some pictures of Parker the day we brought him home. My video didn’t upload well because it was filmed in HD. As soon as I can figure out how to convert it, I’ll post the homecoming video. And immediately below are a couple of endoscopy pics - ewww! Enjoy!

Nothing like a little Tigger at the hospital to make people feel better. John said the nurses LOVED our Tigger Ty - they were gushing all over him! I just hoped they washed their hands before touching! Oink oink - no swine flu allowed!

Kind of gross but I thought someone might be interested in seeing Tyler's esophagus. The scan makes the white markings a little less obvious, but his track was full of them.

Parker Leaves the NICU

2009-10-30T15:30:00.000-07:00

Here's Parker in the NICU ready for discharge. He still has his HUGS tag on so we still couldn't take him (unless we wanted a police escort to jail that is). And we can't ignore the Cowboys going-home outfit ala daddy. If this isn't a set up, I don't know what is. Now John just resorts to Sundays for Cowboys attire - EVERY Sunday! Gotta love a die-hard fan, right?

Snuggle bear in the car getting ready for a drive home. In less than an hour, our Parker will be HOME AT LAST!

Parker Finally At Home!

2009-10-30T15:09:00.000-07:00

Finally at home, we sort of positioned him in the middle of the living where he was going to stay for many months (of course I don't think we realized that at the time). We just stared at him and he looked so little compared to our big furniture and comfy co-sleeper built for twins. And doesn't the oxygen tank just add to the ambiance? Ha ha! And that was a smaller tank...the big guns hadn't arrived yet!

What a sweet face...our little Parky Pooh, sleeping in his bed at home AT LAST! Happy ONE Year Anniversary sweet boy - we love you with ALL our hearts!

Bubbies Have A New Tent

2009-10-25T22:19:00.000-07:00

The boys received the most wonderful gifts on their first birthday. We decided to put some of toys away so we'd have something "new" for the boys throughout the year. Well, we needed a "boost" this weekend and decided to pull out one of the birthday gifts, a tent from our Montana family. This was the perfect gift because our Occupational Therapist has been building little forts with the boys - she's encouraged us to do the same. And the activities on the tent are perfect for their abilities. Here are some fun pics and video of the boys and their new tent!

John: "Why are there so many pieces...I thought it was a "pop up" tent!"

Heather: "Honey this is just the beginning!" Can you say Christmas Eve everyone?

The exploration has begun...

...and the Bubbies immediately play with the SAME thing! Doh!

Nice random family footage of Bubbies in tent!

Brown Bears at GI

2009-10-22T12:48:00.000-07:00

Friday was our GI appointment, bringing new news. We bumped up our appointment because we thought Tyler was possibly having allergic reactions to his formula. He wakes up at night screaming in pain, many times holding his Mic-key button site. During naps he'll cry out while sleeping as if he's uncomfortable. And we've noticed that sometimes during his night time gavages, his eyes will get red and itchy (he rubs them). The ONLY thing going into him right now is Neocate (formula), Nexium (reflux medication), probiotics (VSL brand), and Mirolax (we know what that's for, right?). When we finally saw our GI, we were pleased that she was happy to give us a bunch of samples of another elemental formula, which we've been giving him. So far, we're not convinced it's better or worse than the Neocate. We'll have to wait and see.

BUT the interesting news is that when discussing Tyler's non-eating habit, she agreed that further testing of Tyler's oral track was needed. She ordered an endoscopy with biopsy to determine if there is a physical reason Tyler can't eat. The procedure is out patient, but he will have to be put under for obvious reasons. The appointment is scheduled for October 30th. We're hoping that if something unusual is found, at least we would know what we were working with!

Yesterday Tyler and I went to UCD for swallow study evaluation. The Speech Therapist concluded that Tyler wouldn't be able to complete a swallow study because NOTHING is going down his throat right now. She said they have a hard enough time trying to get oral babies to drink Barium and she didn't see how we could do it and if the results would help us right now. We really need to wait for the endoscopy. The positive thing about our appointment and is that we've decided that both boys should come see the therapist for feeding therapy. We've been trying for months to get our current "rock star" therapist on board to see the boys, but insurance company "issues" are making it impossible right now. It's heart breaking, but I have to get some guidance and assistance or we'll NEVER make progress in their eating. So...for what I hope to be a temporary amount of time, I'll be driving the Bubbies to UCD weekly (or possible every other week when the weather gets icky). What to do but make do!

Below are some pics of the boys in their brown bear snuggly outfits, fitting them a little too well! They've almost outgrown them and winter hasn't started yet. There is also some funny video of them before we left for the appointment. It shows Tyler at his prime - Mr. "chatty, walky, bug brother, don't listen to mommy" brown bear baby! Parker has some cute smiley moments in here too! Enjoy!

Brothers being bored in the waiting room at GI's.

Daddy checking email - good thing he can take all of his electronics with him! Whew...what would we do?

Here's the randomness I taped - just a typical morning with Tyler. He's such a busy guy, isn't he?

Gotta LOVE Brown Bears!

Who's in the Fridge?

2009-10-17T22:30:00.000-07:00

Who snuck by mommy and climbed into the refrigerator before she could close it?

Could it be the baby who doesn't eat? Go figure!

Hands off the champagne Mr. Tyler!

Day at the Park

2009-10-13T23:26:00.001-07:00

John and I decided that before the weather turned we'd expose the boys to life at the park! We live across the street from the park, one of the main reasons we bought the house we're in. I have a feeling that we may be spending some time at the park next summer - just a hunch!

So last weekend we had a little park adventure that turned out to be quite an exploration for the boys and the perfect time-killer for mommy and daddy! ;o) The boys curiously wandered around the equipment and tasted the local bark, tripped and fell on multiple surfaces, and climbed on toy dinosaurs. That's a good time, wouldn't you say? We had to put shoes on the boys (yes, they just don't wear them in the house, go figure) which challenged their walking abilities a bit. They prefer "naked" feet and were periodically distracted by the big rubber things that attacked their feet right before we left for the park.

One of the "firsts" for the boys was going down a slide - yippee! There is video below of their first slide at the park! I will post some other cute video of our park adventure another time - it just takes too long for the videos to upload and three was really pushing the limit tonight! ;o)
Enjoy!

Daddy and Bubbies take a break under the jungle gym - this playing stuff is tough work!

Tyler's hair was sticking up all over because of the static. It was hilarious!

Daddy and Parker riding on a HUGE dinosaur! Don't worry Parker, it's a nice dino!

Bubbies Slide At The Park!

2009-10-13T22:40:00.000-07:00

Parker's first slide at the park. See how SLOW he and daddy go down - it hilarious!

Tyler's first slide at the park, a bit quicker than Parker's because daddy learned from previous experiences - BUT...he goes down so fast he shocks himself! Tyler ended up loving the slide - no surprise here!

Parker's solo slide was not a big hit!

Big Machine, Little Dudes

2009-10-12T00:07:00.000-07:00

We have a "stench" problem in our house that leads directly back to two vomiting, poopy, drooling boys. Our carpets are hiding months of formula spills, baby feeding attempts and lots of reflux traumas. We try to clean up after each "activity" but a burb cloth and hot soapy water can only do sooo much! Well, we finally moved EVERYTHING out of the living room and had the carpet cleaned. Smell the fresh scent...whiff! What? Is that Tyler puking all over the newly cleaned carpet? Catch him! Catch him...nope, missed the burp cloth. Our newly cleaned carpet is once again a breeding ground for our bacteria friends - I can smell them already!

So John is trying to keep up with the constant activity and after Tyler's nightly puke-fest projected beyond our vomit-catching blanket, he pulled out the "big guns". Our made-for-home-use carpet cleaner came to the rescue! We thought the boys would freak out over the noise - and they did, at first. But in no time both boys were in the living room with daddy trying to touch the big machine. "Oh...big carpet cleaner!"

While John was cleaning out the machine, I snapped a picture of the boys attacking it - they were so intrigued. I wonder if this means they're going to be 'bigger is better' guys? Rut roh!

Bubbies Behind the Wheel!

2009-10-07T22:49:00.001-07:00

Parker: "Hey the hands are at 10 & 2...now do you trust me to drive?"

Parker: "Let's put the window up, then down, then up again, then down...wait, what was I just doing? Oh yeah, driving!"

Tyler: "I'm not sure about this driving thing...steering wheel you call it? Yeah, I'll pass for now!"

Tyler: "In fact, I'll just look at myself in the mirror instead...being cute is more fun than driving!"

Yes boys that's right, stick to YOUR cars for now! Mommy doesn't need any stress-inducing activities...yet! I'm not stupid, I know they're coming! Ha ha!

Teeth & Curls

2009-10-06T10:03:00.000-07:00

Tyler: "Get your hands out of my mouth - this is a 'toys & things off the floor only' zone!"

Tyler now has 7 teeth - weird huh? He has four on the bottom, two incisors and ONE front tooth! Yep...that other front tooth is being stubborn! It looks like Tyler LOST his front tooth - his smile cracks me up! And what little nubs he has - I certainly hope they ALL grow in further or he'll have a really hard time eating...that is, WHEN he actually eats! ;o)

When I took Parker to the dentist (because of his grinding & chipped teeth) I asked him if getting your incisors before your front teeth was "odd". He said it was not a 'normal' thing and he wasn't sure he'd seen any patients with this occurrence. I told him BOTH boys got their front teeth AFTER their incisors came in, attributing that to their intubation at birth (the tube actually made a dent on the roof of their mouths - which has resolved). He said we'll never know "why", but their adult teeth should be as 'normal' as anyones.

Parker after a bath...look what happens to his hair. Looking at him from the front is no big deal, totally normal hairdo. But look at the BACK of his head...

...curls baby - LOTS and lots of curls! It looks like I put his hair in curlers! No mommy is not ready to cut hair - leave me alone! ;o)

Parker Walks!

2009-10-04T21:29:00.000-07:00

Well he's been on the cusp and I knew it was only a matter of days before he'd take that first step! Yes, Parker walks! He's been standing up by himself lately and watching Tyler walk around the house like he's been doing it his entire life. In fact I've seen Parker reach out like he's about to walk and then, plop! he sits down. Below is footage of Tyler taking a LONG walk (he's gotten so solid on his feet) and Parker taking a few steps to mommy!

And I promise that as soon as I figure out how to edit, I will "cut the fat", but until then they will remain posted "raw" - sorry! ;o) It's life at it's purest though, right?

Above video: Here is our expert walker, Tyler. He is so steady on his feet now - he actually prefers to walk now instead of crawl!

Above video: Here is Parker's little walk - it's just a few steps, but that's where they start, right? Don't blink or you may miss it - ha ha! Go Parker GO!

The Power of Brother

2009-10-01T14:26:00.000-07:00

Watching the boys play can be quite a show - sometimes a comedy, other times a horror flick! Tyler loves to play with ANYTHING Parker has in his hands - must be better than what he's playing with, right? He is already notorious for stealing brother's toys, crawling over him to get to his ever-so-important destination, pulling his long, beautiful curls, or even walking ON him. Yes, there is no more interesting sight than coming into a room and seeing Tyler standing/walking on top of Parker! What the...? Now Parker is not completely angelic in this scenario, he too has his moments of thievery and bully, but more often than not I can rely on Tyler to come through in this area.
So...if being near each other causes such grief, wouldn't they stay away? ARE YOU KIDDING? John and I are thrilled and amazed at the way the boys stick together. Even through all of the battles, they choose each other. The other day I called for Parker to come give me a hug, on the other side of him was Tyler, luring him in with cars and laughter. Who did Parker go to - yep, you guessed it, he went to his brother! Now mommy was shocked, but understood. Parker didn't need a kiss and hug at that moment, he needed his play buddy, his brother...and I LOVE that!

Brothers just hanging out!

T/P: "What...we're playing nicely, don't worry!"

Could they sit any closer?

Mischief...I think this togetherness will have its challenges, won't it?

Climbing Mnt. Thompson

2009-09-29T22:21:00.000-07:00

One of the skills in the Carolina Assessment (from which the boys will be evaluated) is climbing stairs. So...on their way to nap and bath-times (which take place upstairs), they climb baby CLIMB! Nothing like REALLY tiring the Bubbies out before naptime! Parker is starting to figure out that stair climbing = nap and has been a little sluggish lately. Hummm...I might have to put incentives at the top, nap just isn't incentive enough for them. Now for me...I'd climb the stairs for a nap, are you kidding?

Here's footage of the boys on their latest quest - but it's hard to get decent footage while preventing danger from enveloping TWO newly-climbing Bubbies. Yes, of course the footage is to be desired, nothing new there! But you see that I do use positive reinforcement...and some prodding, whatever! ;o)

Random Cute Pics

2009-09-26T10:02:00.000-07:00

Hello Parker!

Hello Tyler!

Parker riding his car - "Hey two hands on the wheel buddy!"

Parker: "Is THIS better?"

PJs & Laundry Room

2009-09-23T22:58:00.000-07:00

Just another example of the boys NEEDING to go everywhere we don't WANT them to go! Is this a boy thing or a baby thing? Please ignore singing and commentary, again videographer is a little crazy.

Visiting Rosies

2009-09-21T15:27:00.000-07:00

Last night mommy and Bubbies went over to Auntie, Uncle and cousin's (the Rose clan) house for Sunday dinner. The boys had a blast racing around the "track", reminding me of my dog Sadie who used to run around the house in circles, over and over again. The boys learned that the house "path" will always lead you back to the kitchen, the heart of every home, right? They've never had so much room to move and so many people to watch them! What a fun night - here are a few pics of their adventure!

T/P: "We're free!"
They were coming...

...and going...

...and resting...

...and in awe of the BIGGEST television EVER!

Can you tell it's Sunday? Yes, the weekly Sunday outfits - Bubbies clothed via daddy.

Twins Everywhere!

2009-09-18T10:27:00.000-07:00

Parker looking disgusted that I'm taking his picture again. I just love watching him walk around with his little push cart - too stinkin' cute!

So the boys friends, the Campo twins, came to visit last Saturday. They look so cute playing together! Unfortunately, the boys aren't used to full-term lungs and both cried when the girls screamed with their outside voices. Parker was almost hysterical at times...they really need more socialization. I'm not sure they'll be getting it this winter though - the boys just had another pulm appointment yesterday and the doctor is going to recommend year 2 shots of Synagis for RSV. He also suggests little exposure this winter - between another season of RSV and a fierce year for the flu, it's important we don't put the boys at risk. The doctor was happy to see that the boys have grown with the addition of their G-tubes - he says, "The best prevention is good nutrition!" Words to live by, don't you think?

I love this picture of Parker and Samantha - they could be related! Their hair color looks EXACTLY the same in this picture!

The Secret Door

2009-09-16T16:09:00.000-07:00

Since baby-proofing the downstairs, we've been letting the boys roam around freely. I was wondering how long it would take them to find the cat door. Of course the cat is with Grammie taking an extended vacation (that would be forever) so they never see anyone/thing go in and out of the kitty door flap. Well, of course Tyler spies it and that was IT! It's now the most interesting thing EVER! I'm just waiting for one of their heads to go through it.

"Hey mister...what are you doing?"

Tyler: "Who me? I'm innocent!"

"Don't even think about it!"

Parker: "If I don't look at mommy it looks like I can't hear her, right?"

T Cookie

2009-09-14T23:30:00.000-07:00

Auntie Teresa came over today for a wonderful visit - the kind where she made food and folded laundry - who wouldn't want her to visit? She also brought over these fabulous "P" and "T" cookies for the boys. Gotta love it - so of course I had to get video of the boys eating their special cookies from auntie!

So on the Tyler video, John's comment was, "can you help the boy out already?" - guess I wasn't quick enough to "act" in his opinion. I have to defend myself with the knowledge that Tyler does this multiple times a day and yes, I always cuddle after choking. I do have to allow him to work it out though - no "freak out" from mommy is necessary. Okay, his face did get kind of RED at the end of this video...

Tyler REALLY wanted to eat the "T" cookie...you can tell in his exuberance when taking the first bite!

And again...don't mind the videographer...she's doing her best! ;o)

P Cookie

2009-09-14T23:07:00.000-07:00

Parker SLOWLY tastes the "P" Cookie...what is this mysterious thing?

Who Bought the Farm?

2009-09-13T15:06:00.000-07:00

The boys LOVE playing with the farm they received for their birthday - the problem? We don't know who GAVE the boys this farm! There was no name attached to the present and we have yet to find out who blessed us with this fabulous gift!

Did YOU buy this farm?

Let us know...we'd like to thank you!

Lots of fun animals and people to play with, like...

a cow! Yummo - Parker likes the way the cow tastes!

And goat's not too bad either!

Tyler is really into the pig...I see bacon in his future!

Tyler Takes A BIG Walk!

2009-09-11T13:42:00.000-07:00

I finally learned how to post video! Here are a couple of shots of the boys walking - it's pretty cute. The videographer needs some work of course, but the boys make up for the lack of clear and steady footage! Enjoy!

Boys Walk!

2009-09-11T11:47:00.000-07:00

Time to Eat!

2009-09-10T14:38:00.001-07:00

We have a new Feeding Therapist who has already made significant improvements with our eating efforts. Unfortunately I'm stuck in a health insurance vs. state-run services struggle and she may not be able to stay with us. I am VERY sad about this! So this is Tyler's current oral eating situation - fruit purees in a bowl with oral tools dipped in it for "taste". Here's a NUK brush that he chews on to help push back his gag reflex. He also has a duo spoon - a rubber spoon with ridges on it to get his palette used to different textures. Food time isn't too messy with this one!

Parker is working on exploring different kinds of tastes and textures. He continues to eat very little orally but is trying various types of foods. Here he is eating frozen pancakes, cheesy puffs and banana. It continues to be a struggle for me to not focus on the number of bites or calories...the goal is to get him try a variety of foods and get used to multiple textures. I keep forgetting! ;o)

Parker: "Eating isn't THAT bad!"

Dentist for Parker!

2009-09-10T14:29:00.000-07:00

Parker looking concerned about being at the Dentist. Yes, Parker had his first dental appointment because of his grinding! His teeth look a little chipped in the front and I was concerned because his teeth came in quite early. He has eight teeth total and is teething right now again...goodness! The Dentist said everything looked fine and to come back in two years - I guess I was concerned about nothing? Ha ha!

Parker got a tooth brush for his effort! We have to start brushing his teeth regularly now...should easy with a baby who doesn't let you go near his mouth! No problem doc!

Tyler in his jumper - why is THIS significant you ask? Because I didn't put him in it! YES...TYLER CLIMBED INTO THE JUMPER HIMSELF! I was shocked! I was warming up some food for Parker and I looked up because I thought I saw someone jumping up and down...there's Tyler! Of course he couldn't get out himself - I had to help with that! So can you imagine how my days have been lately?

Tyler and Auntie Pam!

Parker with Uncle Brian

2009-09-09T14:51:00.000-07:00

Last Friday was a fun day with Uncle Brian visiting from Southern California. Parker, usually our "stranger danger" guy, LOVED Uncle Brian! He wouldn't leave him or his hat alone. It was pretty cute to see. Of course the boys HAD to wear their Cowboys outfits (to "rub" in uncle's face) but Uncle Brian couldn't resist their charm anyway!

Parker wearing uncle's hat

Parker: "Yay Cowboys!"

Parker: "Hey...I wasn't done with that hat!"

Parker: "Whatcha think uncle?"

Parker: "I make this look GOOOOD!"

Tyler with Uncle Brian

2009-09-09T14:48:00.001-07:00

Tyler: "Does it SAY I'm a Cowboys fan or what?"

Tyler's interaction with Uncle Brian consisted of wearing "the hat"...

...and sunglasses!

Cousin Katie with Tyler, Uncle Brian with Park

2009-09-09T14:46:00.000-07:00

"Okay gang, look at the camera!"

Moneky Mania

2009-09-09T14:44:00.000-07:00

Here are a couple of outfits the boys got from friends on their first birthday - Monkey Mania! They can relate! The camo shorts are too cute!

The Great Escape

2009-09-09T14:39:00.001-07:00

So this is what happens when you try to sequester wild boys into one area. They carefully find all of the open holes and try to pry their way out of their "jail". Note the pillows I have stuffed in every crack of opening...yet, they STILL find a way out. Here's an attempt caught on film:

Parker: "Brother, what are you doing?"

Tyler: "I'm outta this popsicle joint!"

Tyler: "If you act fast, you can join me!"

Parker: "I'm in...looks like fun!"

Cheetah Parker!

2009-08-31T21:55:00.001-07:00

So Auntie Teresa brought over some costumes she got from a Bubbie blog follower. Well, OF COURSE we had to try them on immediately! I've decided to invest in MANY costumes and dress the Bubbies up every now and again for my (our) amusement. What fun!

Daddy begins with the "Bubbie Cheetah Hold"...ready for action...

...AND down he goes! The head is a little big and heavy - BOTH heads that is - Parker's and costume's!

AND his head is up...but can he keep it up...

...YES! Yes he can...but he doesn't look happy about it, does he?

Zebra Tyler

2009-08-31T21:44:00.001-07:00

Tyler is a zebra: Zebras run fast and "bray" (at least that's what Bill Martin Jr. says - our new favorite author)!

Tyler looks punch drunk in this suit!

Doing a spin...let's see the tail...

There it is! Gotta love the mane and tail - niiiiiiiiice!

Telling Secrets!

2009-08-30T16:06:00.000-07:00

Oh no...they've already started leaving mommy and daddy out of the loop! "Spppspppspp...and then....sppppsssspppp...!"

Are They Twins?

2009-08-28T15:14:00.001-07:00

Okay, John and I think it's weird when people say, "The boys look sooo much alike!" Of course to us the boys look sooo different. There are so many variables: hair color, eye color, head size, height, weight, personalities, eating abilities - I could go further but you get the idea. After people get to know the boys and are around them a while, they too see that the boys are not alike AT ALL. But on occasion, I see a glimpse of "twin"...

At the GI docs - too early for the Bubbies, they are just too tired to wake up!

Okay, so my side by side shot of the boys sleeping. They are sleeping exactly the same way and actually look related in this picture! Amazing!

We have been waiting to get doors on our living room "nook" that holds our stereo and I can't WAIT for this to happen. Look what happens when I turn my back for a SECOND!

Tyler: "I'm innocent I say...innocent!"

New Phones!

2009-08-28T15:06:00.000-07:00

John and I got new phones - yippeee! He switched to an IPhone and my IPhone was updated - making getting email and onto the web MUCH easier! So here are the Bubbies being good little guys while mommy and daddy are taking FOREVER at AT&T.

TP: "We are sooo bored!"
Tyler: "I think I'll kick my leg and then..." (cont. below)

Tyler: "...eat my foot?"

Parker: "Do I looked pleased to be here? Exactly how do new phones help me?"

Rather than his foot, Parker decides to chew on his Pedialite bottle. Good choice!

Tyler's First Steps!

2009-08-25T21:27:00.000-07:00

First I must boast about Tyler taking his first steps BY HIMSELF! The other day he was holding on to the couch and I put his favorite stacking pales on the chair about 2 feet away and he just went for them! He certainly didn't know what he was doing, but he walked to them by himself! Fluke? I wondered. Again today I was challenging him and trying to get him to trust his footing and he successfully walked about three steps by himself - twice! It was just thrilling to see! I grabbed the video camera and of course he quit doing it! Doh! But we are sooo very proud of him!

Okay, less exciting news: Went to the Pediatrician yesterday for the boys 1-year well checkup and immunizations - yes, technically they are 14 months, but adjusted they are really 11 months old so I'm okay with a late visit. The doctor said they are both doing well and are actually on the growth charts for their actual age! They were both 29" in length and Tyler weighed 18lbs 14oz and Parker weighed 18 lbs 7oz. Whew...they are on a roll finally! And of course Parker's head was in the 75%, which wasn't a shocker. Their shots made them VERY sad but they both quickly snapped out of the crying and seemed fine the rest of the day. I was concerned that they'd have a reaction to the live cultures, but neither ended up with even a fever - that was nice.

We discussed the chance of the boys getting Synagis shots (for RSV) again this winter and he told us that our Pulmonologist has to put the referral through because it's a respiratory virus. But he did say that the boys MUST get the Swine Flu and regular Flu vaccinations as soon as he gets them. He also suggested that John and I get both shots, but in watching the news it looks like there might not be enough to go around! I think adults in the their 40's are at the bottom of the list. We will definitely get our regular flu shots and try our best to get the other - when available!

So to share some equal Bubbie ability boasting (say that five times), the boys can do the sounds/mouth movements for "airplane", "horse", and "fish" (fish has no sound, your mouth just goes up and down - Parker does it REALLY well...it's sooo stinkin' cute)! Here are some random pics I took today of the Bubbies just playing around!

T & P: What? We didn't do anything, swear!

Parker sitting there being cute and he doesn't even know it!

Parker's "Fists of Fury" - he does this cute thing where he tightens his fists and shakes them while yelling. I actually think it's so funny but he's obviously trying to communicate something important to me!

Tyler just standing around - because there's nothing better to do!

Tyler playing hard with the rings - they never get old, do they?

2009-08-21T23:03:00.000-07:00

Wow...I can't believe it's the weekend - I just don't know where time goes! Well, we had a full week of appointments: Mic-key buttons were placed Monday; Tuesday was the feeding therapy assessment; Thursday included weight checks at the GI's office; and today I filled out paperwork with Easter Seals for their Occupational Therapy. Fun times! Could my life be ANY more about the Bubbies - wowzer!

The buttons are a nice change from the big, cumbersome tubes that once protruded from the boys stomachs. The tubing is different for gavaging bolus and continuous feeds but I'm getting the hang of it. The biggest challenge is keeping the boys fairly still while I'm gravity tubing anything - formula or medicines. They are soooo antsy! Tyler's button area looks a little raw and the granulation tissue around the button is gross. The doctor put silver nitrate on both boys stoma areas to burn off the extra tissue - I think it hurt a bit because they both cried. ;o( I am keeping an eye on Tyler's because it always builds crusties around it. Fun huh? So after the boys recovered from the Rotavirus, both of their weights dropped drastically. Since then, both boys have gained a significant amount of weight and at the GI's check were: Parker 18lbs 1oz, Tyler 18lbs 12oz. This is exactly what the Pulmonologist wanted to see - two fat babies! Well, they're not quite "fat" yet, but we're coming up to chubby at least!

I'll have to write on the meeting with the Feeding Therapist later but I can express that we are VERY happy and feel extremely fortunate to have met her. She immediately recognized why the boys weren't eating and is developing a plan to begin reversing their non-eating habits. John and I are very excited to begin our journey to creating two eating boys!

Well, I have to hit the hay - John is working the High School dance tonight and I'm holding down the fort and feel pretty exhausted. Enjoy some pics of the boys playing today!

Parker: "Hey...don't you mess with my wipes and Diaper Genie!"
The boys have a THOUSAND toys and what do they play with...the stuff you don't WANT them to play with! That's how our Diaper Genie looks all day...on its side. And exactly what's the fun in wipes? The wrapper makes a cool crackling noise - oh joy!

Look at those eight teeth! Poor guy doesn't know what's about to hit him - a trip to the dentist! Parker is grinding and chipping his teeth - and I think they're also a little discolored. Just ONE MORE thing - good grief!

Tyler: "YOU want a smile out of ME?"

Can't fool me Ty Ty...what a faker! Look at that appeasing smile - just for mommy's sake, I know!

Rub A Dub Dub...Two Bubbies In A Tub!

2009-08-18T21:24:00.000-07:00

Hey it's bathtime - lighten up!

Bubbies took their first bubble bath together - and with daddy too! Yes, John did wear his bathing suit - ha ha! I think the boys didn't realize they were supposed to have splashy splash fun...Parker chewed on bath toys and Tyler just leaned up against John and looked around the entire time...oh, and complained when mommy washed his hair - but that's a given!

Lighten It Up!

2009-08-16T23:11:00.000-07:00

So much has happened with the boys and I feel that these re-occurring incidents will "hold" me for...a lifetime maybe! I think I've learned MANY MANY lessons and feel WAY prepared for anything thrown this way, so isn't that enough? I can't imagine WHAT else John and I are supposed to learn or how many more hurdles we have to jump. Oh, wait...Mic-key buttons are going in tomorrow, feeding therapy evaluation on Tuesday, fighting with my insurance company and Alta Regional to secure services for the boys the rest of the week...okay, LOTS more to do and learn!

Anyway, I know I was ready for a break after our last trauma and was happy to fly to Montana for my sister's wedding. I left Thursday and returned LATE Saturday night (technically early Sunday morning after a nice delay in Seattle) - just enough distance to have a small break, but miss my guys terribly at the same time. I was relieved that Velear, my future sister-in-law, volunteered to come over from the Bay Area and watch the boys. She and Katie Garland kept the boys on schedule for two days while John worked. You can't imagine how nice it was knowing that the Bubbies were in capable hands! I can't thank them enough!

The wedding was intimate and beautiful - I'd post a pic of the special event but I forgot my camera! Doh! Just as well as I became the wedding photographer and ended up taking pictures with my sister's brand new Cannon - very nice! Should I get my hands on some wedding pics, I will post them. Until then, I can tell you that it was a surprise trip - my sister had no idea that I was coming. My mother flew in and surprised her as well. We stayed at a beautiful resort in Polson Montana located on Flathead Lake. It was a quick, exhausting, and joyful trip!

When I returned I noticed that some very cute pics were saved on my camera! To lighten things up a bit, here are some random shots of boys!

Great pic of Tyler standing on his own - good job Bubbie!

Park, don't EAT the book!

Parker: "Don't worry...I don't just eat them, I READ them too!"

Tyler rides horsy..."neigh"!

Tyler: "I'm a WILD and CRAZY guy!"

The Life and Times of Tyler and Parker

Hey, Where You Been?

Summer Water Fun!

Oregon Wedding

Washington Trip

Marine World!

Becoming 2 Over and Over Again!

Happy 2nd Birthday and Bubbie Update

Happy 2nd Birthday Tyler and Parker!

Peek A Boo!

Eating Challenges and Reflux Tests!

Parker with Monitor and Tyler with Song

Bubbie GI Update!

All About Parker

No Throwing Rocks!

Funny Video!

Happy Easter!

Bunnie Bubbies!

Not So Quick Bubbie Update

Tyler the Actor!

Luck 'O The Bubbies!

Tyler Stands On A Rock

Day At The Park

Act Natural!

Practicing Our Manners

What Bubbies Eat!

Staying in on a stormy day - what to do?

Family LOVE!

Allergies, Shots, Dehydration and Weight Loss - Oh My!

Happy Birthday Grandpa!

Baby It's Cold Outside!

Into and On Top of Everything!

First Wagon Ride!

FIRST Haircuts!

FIRST Haircuts - the video!

More Christmas Video - Instruments

Christmas 2009 with Bubbies!

Tyler and Parker Meet Santa!

Dinner Time!

After Dinner Fun!

GI & Developmental Therapy

Morning Crazies!

Baby Girl?

Happy Thanksgiving 2009!

A Balancing Act

Anniversary and Eating!

Biopsy Results

They call him the Streak!

Mystery Diagnosis

Happy Halloween from Pooh and Tigger

Halloween Video

Endoscopies and Anniversaries!

Parker Leaves the NICU

Parker Finally At Home!

Bubbies Have A New Tent

Brown Bears at GI

Who's in the Fridge?

Day at the Park

Bubbies Slide At The Park!

Big Machine, Little Dudes

Bubbies Behind the Wheel!

Teeth & Curls

Parker Walks!

The Power of Brother

Climbing Mnt. Thompson

Random Cute Pics

PJs & Laundry Room

Visiting Rosies

Twins Everywhere!

The Secret Door

T Cookie

P Cookie

Who Bought the Farm?

Tyler Takes A BIG Walk!

Boys Walk!

Time to Eat!

Dentist for Parker!

Parker with Uncle Brian

Tyler with Uncle Brian

Cousin Katie with Tyler, Uncle Brian with Park